New look and a look in.

Why, yes, I did move my blog and redesign it.  Thanks for noticing!
That must have been a lot of work, say you.  Oh, it was!  But that is where tech savvy husbands come in handy.  (thanks Charley!)  The real work was going through old photographs and old posts.  I’ve not re-read this journal, because even though it’s my journey, or perhaps because it’s my journey, it is too painful to read.  I look at picture perfect pictures from the past and want to crawl inside them.  I want to scoop Tuesday up and smell her soft skin.  To wash her once perfect, and then later, broken little body. I start to panic, just scanning the images of a lifetime ago.  I hold my breath as I search her eyes for some sort of clue.  A knowledge of what lies beneath the surface. Those photo albums tell the story best.  All was fine, and then it wasn’t.

Here are some photos taken since we left Oregon and headed east.  They tell their own story.

Astoria, OR
or1

Seattle, WA
WA6
WA5
WA4

Spokane, WA
WA2
WA1
WA3
Montana, Battle of Little Big Horn National Cemetery
MT1
MT2
Devil’s Tower, Wyoming
DT1
DT2
Mount Rushmore
rush2
South Dakota
sd1
sd2
sd5
Chicago
chi1
chi2
chi3
chi5
chi6

Pennsylvania

pa2

pa1
New York
nyc8
ncy7
nyc4
nyc6
nyc5
nyc3
nyc2
nyc1
Washington D.C. We had a surprise visit from our next door neighbors.  It was great fun.  It made us all a bit home sick, too.
DC1
dc2
dc3
dc5

dc4
dc7
dc8
dc9
I know.  That should be Tuesday, right?        Friends are really important too.

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Disjointed thoughts from a weary traveler

We arrived in the mountains of North Carolina on Sunday night, after an all day drive from Washington DC. We will stay put at Charley’s mom’s through November. We are approaching 7 weeks on the road and have literally been from sea to shining sea. I’ve not written, mostly because my battery is fried on my laptop but also, because it feels like work, and since most of this trip truly is work, I’m not interested in adding more.

It is good. It is hard. This good/hard has become a common theme for us.

We have been to and through, Rawlins, Wy, Boise, ID, Bend, OR, Portland, OR, Cape Lookout State Park, OR, Tilamook, OR, Astoria, OR, Seattle, WA, Spokane, WA, Coeur d’Alene, ID, Missoula, MT, Billings, MT, Sturgis, SD, Wall, SD, Sioux Falls, SD (Yes, South Dakota is LONGGGGG) St. Paul, MN, Wisconsin Dells, WI, Milwaukee, WI, Fox Lake, IL, Glen Ellyn, IL, Chicago, IL, Howe, IN, Mercer, IN, Landingville, PA, Maplewood, NJ, NYC, DC, Ashville, NC. Phew.


We have battled freezing pipes, we have been totally freaked out, we have gotten stuck, we have had “issues” with our dog, we have flipped out on our kids, we have had “the” flu, we have had major repair work done.


We have seen awe inspiring views, we have seen National treasures, we have been proud of our kids, our selves and our country. We have eaten the world’s biggest cinnamon roll, we have unplugged from tv and turned up the music, we have laughed a lot. We have cried a lot. We are the essence of spontaneity. Good and bad.


We have seen friends that we adore and miss and talk about visiting, but never do. We have sat with them and cried with them over Tuesday’s fate. We have watched our combined children play and become fast friends. We all notice the obvious void. Some mention it. Some don’t. But, we all feel it.

Our boys are so great at including Piper in their play. They are so protective. But, there is a painful, underlying competition for her affection. Spencer feels this the strongest because “Tuesday was his and Piper is Axel’s”. It’s kind of true and it crushes me. I’m pissed that after all the suffering we had to witness with Tuesday, here we are, still watching our children suffer.

“Is this our home?”

“Do we have a home?”

“Is Otto dead?” (after a 4 day stay at the dog kennel)

“Maybe we can have another baby and name her Tuesday.”

“Do we still get to have Christmas?”

Their poor, sweet minds. How are they supposed to get any of this when I can’t even wrap my mind around it. I still don’t know if this is the right thing to be be doing. There has been a lot of yelling. But, there was a lot of yelling at home too. It mostly feels right, but sometimes it feels wrong. Mostly when It’s raining and I’m about to get my period. But it always feels bad when it’s raining or I’m about to get my period. It’s not the RV’s fault.

Despite all that, the kids are really in a groove with one another right now. It’s awesome to watch their imaginations in full bloom. They have built a fort in every state, both in the RV and out. They are growing before our eyes. (Something that we missed all together last year) We are growing. There are bound to be some pains. Charley and I are not in our groove. This makes me sad. We will figure it out. We always do.

Our last stretch, through Roanoke, VA, has set me in a bad place. The last time I drove those roads, I was on a trip by myself with two, fat, healthy baby girls. Life was good.

It’s still good, right?

Despite it all, life is still good.


www.thewhitts.com


p.s. While we have been gone, children are continuing to battle, relapse, and die. What are YOU going to do about it?

www.whatchagonnado.org




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Miles for Tuesday


http://cbs4denver.com/local/marathon.Tuesday.cancer.2.1251342.html
video is on the right hand side of the screen
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Moving on, or forward, or something like that.



Missoula, MT

Emotions have been running high the past few days. High, and deep and wide and seeping out the seams and running over the top. Mostly mine, but of course that makes everyone else on edge too. I don’t know how to get past it either. Yes, I know all of the obvious things, but I don’t know how get out of this place. (no, not the RV) Yes, baby steps, day by day, blah, blah, blah. I know it’s cyclical. It will most likely be a bit better tomorrow. I can’t believe how powerful missing someone can be. No need to explain any thoughts on celebrating a twin birthday when one of your twins has died. You can come up with all of those painful scenarios on your own.

We’ve just left Washington state, where we stayed in Seattle for a couple days and then on to Spokane for a couple more. We spent my birthday morning at Pike Pace where Charley indulged me with pastries and coffee and flowers. We spent Piper and Tuesday’s birthday running on bridges around Spokane. My anxiety levels must be insane right now because I was sure that the kids were going to jump every time I turned my head. I hate feeling like that. I just want to let them run on the stupid bridge with out yelling ‘be careful’ every 4 steps. I liked living in that fantasy world where children didn’t die. But since we don’t live in that world, and since children do die, we went to the Sacred Heart Children’s Hospital and left money, our mission, and Tuesday’s story, with a sweet nurse named Lindsey, for another high risk, Neuroblastoma family. If you happen to be that family and you happen to come across this post, know that we are holding you close and praying for the strength to keep on. The kids were bummed that they had to wait in the hall because of flu season. I think they were looking forward to meeting someone and being the expert. Poor, sweet Piper asked if Tuesday was there. It almost killed me.

Yesterday was Couer d’Alene, ID. It is gorgeous. We got a ticket for not having a trailer on the RV. (whatever) I met a woman who lost her 16 year old son, years ago, in a canoe accident. It was cold. I cried a lot. We went to a toy store. I cried a lot. That’s about all I remember. At the end of the day, I needed to move the car to this big, empty parking lot. When I got out of the car, I saw this.


Thank you for the reminder. I’m trying.

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October 11

Happy Birthday. That’s all I’ve got.

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