I’m sure it’s because our foray in to the world of cancer was a bit extreme, but this quick 4 day trip back to Children’s has been pretty easy. What has not been easy is seeing Tuesday feeling rotten from the chemotherapy. The first 2 rounds don’t really count since she was comatose, but she did swimmingly this past cycle. Day 1 was good, but by yesterday afternoon she was very clingy, stopped eating and cried herself to sleep in my arms. I’m sure this will sound ridiculous, but I all of a sudden felt choked by the reality of cancer and chemo and all that that holds. Trust me, Fantasy Camp was officially closed as we headed back to the hospital for treatment this time, but when Tuesday is feeling good we all feel good and it’s easy to down play what we’re up against. However, Tuesday IS feeling good. And looking good and doing good and we are focusing all of our energy on this and we’re thankful for every good day. Today was a good day. We hung out in the play room. Did a little painting, did a halloween craft and took a trip outside with daddy. Charley and I are taking shifts at the hospital and that means we have not seen much of each other. Maybe this is not such a bad thing. We are still coming down from the blow out we had on Monday night when we decided to build a quick (HA!) impromptu mud room. Great idea on the eve of a week stay in the hospital, huh? Only us. Of course it’s only “almost” finished and in true Whitt fashion will most likely remain that way for the next 5 years. In the future, we agree to either take on home remodeling projects or pediatric cancer, not both at the same time. Oh, did I tell you how much I love Charley? I could not do this with out him. (the cancer, not the remodeling.)
Chemo Day 3
So we finish up tomorrow and should be home by tomorrow evening. We expect that she’ll go neutropenic this time so I’ll be installing a Purell dipping vat in our new mud room. Either that I’ll just make us wash our hands til they bleed. And I’ll pray.
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She is absolutely beautiful and breath taking! Tuesday, we are all praying for you daily. You are a child of the King and He will give you the strength you need to continue this fight!
Jess, it is so good to “hear” from you! I am so glad to hear that Tuesday is being a trooper through all of this! She is such a fighter! What a tough cookie!
I can’t believe you guys are taking on the task of a mud room! You kill me! lol Good Luck getting it finished!
I love you guys! Thanks for the update! We’ll keep praying!
beautiful picture! I am praying with you! I am so thankful every time I hear that she is doing good! What a fighter! Just like her mom! Blessings to you, Tuesday and the entire family!
I’ll continue praying for you. You all seem to be doing so well under circumstances. Geez, I would never attempt home improvements unless nothing else is going on in our lives – and I should know, I’m an architect. You are such brave people!;-)
I’m sooo glad that she is doing well! I’ll be praying with you EVERY DAY!
Good luck getting the mud room finished! š
Jess,
HOLY cow! Are you crazy woman!?! I remember the basement remodel…. lol…so now the mud room??? Crazy, crazy woman! (although I guess it keeps your mind busy, huh?)
Tuesday looks just fantastic! I swear, every time I see her pictures I am amazed by her healthy glow and just can see the light of God all around her.
Many many prayers being said.
Keep being strong.
Give that sweet, beautiful, little girlie a hug from us. I don’t know how you do this but I will keep praying for strength and of course for Miss Tutu to be completely well! Love you guys so very much!
You and Charley crack me up. A mud room? How about a couple plastic mats to walk yourselves into the basement bathroom? You always have to do things big don’t you? I am sorry Tuesday is feeling crummy but glad she is doing so well. She is still the most awesome kid I know.
Your entry was just making me realize how much we may have in common ;0) we had Brandan in coma in the picu, he survives a cardiac and 3 respiratory arrests,my husband has 2 accidents (not his fault at all)totalling both of our cars, our home is on the market to avoid foreclosure and we are trying to manage a remodel from the hospital (we never got a chance to leave for 6 months) and I was just laid off trying to find another job. I tell you we learnt to take things one step at the time after that,we are patient now when things are only half way done and we know we will finish later
;0) Last year we were spinning 150 miles an hour and thought we were loosing our minds and we were testing our marriage…but you make it through and you learn some amazing things about your kids, yourselves and what matters in life. We are doing the same crazy stuff once in a while. Just spent the last 2 weeks back and forth between 2 hospitals in and out tested for anything and relapse and we are finishing our outdoor projects, patio, rock walls, driveway you name it we had to do after last year…just to keep up. Now Brandan is still NED and we just got back to finish up outside. Purell and Clorox and Lysol has been our best friends
;0) and we asked for cleaning products for our wedding anyversary hahahaha but it is necessary when you have such little ones. Is Tuesday on Septra (antibiotic)on the weekends? If so that was a real blessing and it really made life so nice and Brandan was well protected on that while we got it. Good luck and have a wonderful weekend…hugs to the whole family
Hickeys
http://www.caringbridge.org/visit/brando
Tuesday will do awesome I know it! As for you and Charley…a mud room?! Seriously JK you are funny. I loved the pics that your friend took of Tuesday. My favorites though were the ones of you holding her. Gorgeous. I remain amazed at the strength your family has held onto during this time. I lov looking at pics of Tuesday these days. She has a life, strength, old soul in her eyes. I will continue to keep you and yours in my thoughts and prayers. Hugs from Jersey!
Did you know, the Whitts rock? They are the most stinkin’ awesomest family! When I grow up, I wish we could be you.
Tuesday – rock on, we’re always praying for you all the time. Tell your mama, we love her.
xo
lisa
Hey Whitt’s, this is Troy Freedman first from Peds pathways, then from the PICU. Have been following your updates closely. Faithfully praying for you all, and for Tuesday the most of course. In my past vocational and present recreational life, I have spent a great deal of my time doing carpentry and remodeling our home. I would be DELIGHTED and honored if you would let me help you finish your mudroom. I have loads of tools and a fair amount of experience to boot. Let me do more than pray. Let me know if you’re up for it when time permits.
sincerely, troy
freedmanning@hotmail.com
What a precious little girl. I’m still praying for her daily…i can’t even understand or fathom what you feel right now! I hope Tuesday feels better soon(she is such a precious and strong little fighter)…and i’m still praying for more help in the fight against childhood cancer!
Brenda
P.S. good luck with the mudroom…goodness you are one busy lady working on a mudroom right before going back to the hospital..your going to need a vacation asap! š
Thinking of you. Thanks for keeping up your blog about Tuesday and your family.
Sorry this cycle was so much rougher than the past three š I am late on this, so I hope you are home again by now and that Tuesday is doing a lot better. Praying that this chemo cycle did some serious damage to the cancer and that you all may enjoy the next few weeks home before the next one.
Are you home? We are all thinking about you and praying hard still. I hope Miss Tutu is back to eating and being happy. She’s such a brave little girl.
Only you could take on a mud room project in the midst of this. That’s one of the reasons we all love you so much š
Just wanted to say Happy Birthday to all you October birthday girls!
Mine was the 1st and my daughter will be eight on the 10th, which I hear is your’s?? Then your precious girls the next day?? WOW!
Hope you ladies get totally spoiled and that darling little Tuesday feels better ASAP!
Wow, this is my first time stopping by. Tuesday is beautiful and I will think of and prayer for her all through the week.
Leah