Day 20. Day 16 in PICU
If I was superstitious I might be afraid to tell you that Tuesday is doing better. I might be afraid to mention that she’s finally passing fluids, or in doctoreese, diuresing. I’d probably worry about jinxing something by telling you her blood counts look great. Or mentioning that she just LOOKS better. But since I’m not superstitious I think I’ll go out on a limb and say that Tuesday is in fact doing better. They are weaning her down on her vent settings.
*side note The janitor is in here spraying some sort of cleaning solution on a tiny spot on the floor. She’s been at for at least 8 minutes now. Give it up honey.
Charley and the kids are on their way in. We still have not had them in to see her in the ICU because it’s scary and Tuesday really doesn’t look like Tuesday. They are bring her new artwork for her walls and they’ll pick her out some new balloons. Half defleated balloons are so depressing. We are all anxious to get her out of ICU so that the kids can come see her and so that we can hold her again. I’m dying to hold her again.
Once again, thanks you all for your love, prayers and support. We are blown away.
Something specific to pray for:
That we are able to get Tuesday off the vent before her next round of Chemo, starting somewhere around the 17th.
I’ll try and update more often.
I’m so glad you’re not superstitious 🙂 Even more glad to hear that Tuesday is doing better and you may get to hold her again soon. Still praying that she will get off the vent before the next chemo round and maybe even get to go home for a while after that!
xoxo
Shannon
P.S. Love the “Super Tuesday” photo, its perfect 🙂
So much love to you hon! Great news. Tuesday having a good (in relative terms) day makes me have a great day. I will call you later after the family leaves. I pray so many times a day for her to get out of the ICU. She will soon. I have faith.
Dear Lord God, Thank You that we are hearing good news about little Tuesday. We continue to pray for her Lord, we ask for a miracle. We ask that even today, Lord that she
may be able to come off the vent. We pray that You touch her lungs and cause them to function properly
and that you cause her body to be rid of the cancer. We dare to pray that even today she might be in her family’s arms. Strengthen Tuesday and her family and let them
feel Your Love surrounding them. Give wisdom to the medical staff let them realize the power of mother/child love, touch and closeness on healing. We thank you again Dear Lord for what You have done and will give Glory to Your Name. In Jesus precious Name we ask
these things.
Amen
Love Jenn H’s mom
Thank you for the update. I just learned of Tuesday yesterday but already she is in my heart and prayers. Any news is good news and positive news is even better. Keep the faith! The power of positive thinking is amazing. I can’t wait to hear that you can hold her and kiss her and she can play again too. That is the day that I’m praying for on your behalf.
Wow – this is great news! She can hear you Jess – keep talking to her. Love getting your updates and seeing a new photo now and then. Will light a candle at church tomorrow for you all. Hang in there. Hugs – Christel
How fantastic! It is great to hear you sounding more and more like yourself and just WONDERFUL to hear that God is at work. Tuesday is heading towards recovery. I just KNOW it. Feel it in my bones.
Silly to be superstitious and so much better to just have faith. I am so proud of you for staying so strong.
Many many blessings to you.
Much love, Debi
I am glad to hear that today has been a better day. We will keep praying for her to come off the vent! That is good that you get to spend time today as an entire family unit. All our love and prayers.
Keep hanging in there JK, Tuesday and the rest of the Whitt family. I think of you and pray for you every day. Im so glad she is diuresing… kidney function is important… now on to weaning off the vent! Many hugs to you… hope you can hold your little girl soon… I think it is very needed for you and her!
We're still praying for you every single day. How wonderful to hear that Tuesday is making progress & that you may be able to hold her again soon! We'll continue to pray for her to be off the vent before her next round.
I’m praying she gets off the vent and will specifically write a prayer card for it tomorrow. I don’t doubt you’re dying to hold her, I’d love to hold her too.
Always thinking of you guys!
I get so anxious to hear updates, but then to hear such blessings taking place truly brings me comfort and makes my day!!! I’m so glad you were able to get out and have a cocktail, Momma! Miss Tuesday is always in my thoughts.
X0X0X Bre
Told everyone here that are praying for Tuesday that their prayers are working and to keep them coming. I know that you will get to hold her soon.
Thinking of all of you.
Love,
Aunt SUSU and Uncle Jim
Longing to see her zip around with her IV
stand and hear her say “No, no!”
Grammy Leslie
Keeping you in my prayers everyday. Hugs and prayers. Carolyn Wing grandma to Laura Stage IV neuroblstma carepages.com page name LauraVDB
carolyn_wing@yahoo.com
So, So glad to hear that things are looking up! I will contine to pray tht she is able to come out of PICU so she can be held and snuggled!
God Bless!
That’s wonderful news Jess. She’s a fighter. Love, Lisa
I can not imagine how much you are wanting to hold her. Praying that she comes off the vent! Thinking of you all and praying every day!
My darling JK. It’s so good to hear you in better spirits. Thank goodness you aren’t superstitious. I’m so glad to hear that Super Tuesday is getting through this. I hope the visit with the kids went well and she’s enjoying all of the new artwork on her walls. We love you all so much and you are all in our prayers each and every day. Big hugs sweetie.
OH I am just so happy that she is doing better. I look forward to your updates so much. That little girl NEVER leaves my mind or my prayers. It’s such a relief that she is passing those fluids finally and weaning off the vent. I am praying soo soo hard that she gets off the vent and back to her old room ASAP..
Much much LOVE to you and your entire family!!
Christy
YAY Tuesday! Always thinking of you guys!
Alisha
I stopped by from my friend, Nichole’s blog. We’ve spent many, many days in the PICU ourselves – 7 open heart surgeries between two of our four children. Ours is a teaching hospital, too. I just laughed outloud at dad’s PoV re: residents and eye glass frames. Keep your heads up. God’s grace showers down.
So glad to hear some Good News!!! we all are parying constantly for her!
SOOOO glad to hear things are looking up! Little Miss Tuesday sure is a fighter and I know she will continue to be!! We think and pray for her and the whole family all the time!!!! You are never far from our thoughts! Big hugs to all of you!
Jenn, Bill, Lauren & Avery
Just to say I am still praying, and delighted that she is looking better.
The Lord will guide you continually, watering your life when you are dry and keeping you healthy, too.
Isaiah 58:11
Guide me, O Thou great Jehovah,
Pilgrim through this barren land;
I am weak, but Thou art mighty;
Hold me with Thy powerful hand;
Bread of heaven,
Feed me till I want no more,
Feed me till I want no more. William Williams
(I wasn’t sure if you would get the time to publish your prayers for Tuesday on Tuesday, but I wanted to share these with you today…and always)
Love, Debi
I can’t wait to see those toes dancing around with her family at home. Thinking of you all of the time (really ALL of the time!)