John, Barack, or Jessica?
Who is more nervous?
Results
Sorry for the delay in posting scan results. It’s been busy around here and absolutely gorgeous outside. Much too pretty to be on the computer. Anyhoo, here is a copy of an email I sent to some friends on Friday. Now, back to the great out doors. We have piles of leaves that need jumped in.
All in all we got good news. The bone scan came back clean. SHe had a lesion on each femur and a small spot on her hip. These no longer are there. Phew. Her MIBG, which is the most sensitive test, showed a trace amout in the left femur, so apparently there is still some cell activity there but no one is concerned with that. They said it will most certainly be wiped out with the final round of chemo and definitely by the stem cell transplant. Her primary tumor on her adrenal gland started off at 12.5 cm X 15.5 cm. Measure that sucker out on a piece of paper if you want to be shocked. It was freaking enormous. It is now a 3.5 x 5 cm, mostly dead tumor. A little smaller than a golf ball. This is a major accomplishment for a NB tumor. There is still some involvement with her arteries and vessels, but it looks like dead tissue. SOmetimes this just peels away from what is in contact with. SOmetimes not. We wont know until the surgeon is in there. They may need to remove Tuesday’s right kidney and again, wont know til they are in there. The only kind of bummer news that we got is that she still has a 1cm nodule of dead, calcified tumor near her heart that needs to be removed. The surgeon isn’t real excited about doing it but Oncology says it needs to come out. This is still up for debate. It will ultimately be radiated, although this is also up for debate because they have not had an issue where there was a tumor touching the heart before. All of the big wigs around the country are discussing the best plan for minimal long term damage to Tuesday. SO, mostly great news. We will deal with the so so news when we have more info. We all got teary eyed and her Primary oncologist and fellow both called her a miracle and said they could have never imagined that she would be where she is today. God has been hard at work in our little girl.
Surgery is on Tuesday the 4th of Nov. followed by her 6th and final round of induction chemo when she recovers. We will be in the hospital for about 2 and 1/2 weeks. Then home until the 27th of Dec. for transplant. That is a story for another time.
Thanks for thinking of us and praying for us.
Scans
Charley and Tuesday just left for the hospital while I stay and get the kids off to school. This morning Tuesday will get a CT scan and a bone scan, CBC and injections of a radioactive isotope for her MIBG scan tomorrow. We (mostly me) are a bit freaked. We have not had a look at the tumor or other “spots” since after her 2nd cycle of chemo. Anything is possible. As we’ve witnessed, all things are possible with God.
The kindness of strangers.
In addition to flying from Atlanta to Denver to help with the kids, Charley’s aunt SuSu has been busy pounding the pavements of Conyers, GA. to raise money for Tuesday’s medical expenses.
