Sorry for the delay in posting scan results. It’s been busy around here and absolutely gorgeous outside. Much too pretty to be on the computer. Anyhoo, here is a copy of an email I sent to some friends on Friday. Now, back to the great out doors. We have piles of leaves that need jumped in.
Halloween pictures to come.
xoxo
What a long couple of days. I just took a nap with the girls and was totally out of it when I woke up.
All in all we got good news. The bone scan came back clean. SHe had a lesion on each femur and a small spot on her hip. These no longer are there. Phew. Her MIBG, which is the most sensitive test, showed a trace amout in the left femur, so apparently there is still some cell activity there but no one is concerned with that. They said it will most certainly be wiped out with the final round of chemo and definitely by the stem cell transplant. Her primary tumor on her adrenal gland started off at 12.5 cm X 15.5 cm. Measure that sucker out on a piece of paper if you want to be shocked. It was freaking enormous. It is now a 3.5 x 5 cm, mostly dead tumor. A little smaller than a golf ball. This is a major accomplishment for a NB tumor. There is still some involvement with her arteries and vessels, but it looks like dead tissue. SOmetimes this just peels away from what is in contact with. SOmetimes not. We wont know until the surgeon is in there. They may need to remove Tuesday’s right kidney and again, wont know til they are in there. The only kind of bummer news that we got is that she still has a 1cm nodule of dead, calcified tumor near her heart that needs to be removed. The surgeon isn’t real excited about doing it but Oncology says it needs to come out. This is still up for debate. It will ultimately be radiated, although this is also up for debate because they have not had an issue where there was a tumor touching the heart before. All of the big wigs around the country are discussing the best plan for minimal long term damage to Tuesday. SO, mostly great news. We will deal with the so so news when we have more info. We all got teary eyed and her Primary oncologist and fellow both called her a miracle and said they could have never imagined that she would be where she is today. God has been hard at work in our little girl.
Surgery is on Tuesday the 4th of Nov. followed by her 6th and final round of induction chemo when she recovers. We will be in the hospital for about 2 and 1/2 weeks. Then home until the 27th of Dec. for transplant. That is a story for another time.
Thanks for thinking of us and praying for us.
All in all we got good news. The bone scan came back clean. SHe had a lesion on each femur and a small spot on her hip. These no longer are there. Phew. Her MIBG, which is the most sensitive test, showed a trace amout in the left femur, so apparently there is still some cell activity there but no one is concerned with that. They said it will most certainly be wiped out with the final round of chemo and definitely by the stem cell transplant. Her primary tumor on her adrenal gland started off at 12.5 cm X 15.5 cm. Measure that sucker out on a piece of paper if you want to be shocked. It was freaking enormous. It is now a 3.5 x 5 cm, mostly dead tumor. A little smaller than a golf ball. This is a major accomplishment for a NB tumor. There is still some involvement with her arteries and vessels, but it looks like dead tissue. SOmetimes this just peels away from what is in contact with. SOmetimes not. We wont know until the surgeon is in there. They may need to remove Tuesday’s right kidney and again, wont know til they are in there. The only kind of bummer news that we got is that she still has a 1cm nodule of dead, calcified tumor near her heart that needs to be removed. The surgeon isn’t real excited about doing it but Oncology says it needs to come out. This is still up for debate. It will ultimately be radiated, although this is also up for debate because they have not had an issue where there was a tumor touching the heart before. All of the big wigs around the country are discussing the best plan for minimal long term damage to Tuesday. SO, mostly great news. We will deal with the so so news when we have more info. We all got teary eyed and her Primary oncologist and fellow both called her a miracle and said they could have never imagined that she would be where she is today. God has been hard at work in our little girl.
Surgery is on Tuesday the 4th of Nov. followed by her 6th and final round of induction chemo when she recovers. We will be in the hospital for about 2 and 1/2 weeks. Then home until the 27th of Dec. for transplant. That is a story for another time.
Thanks for thinking of us and praying for us.
Im happy to hear that things are doing well. Tuesday is a very strong little girls and so is her whole family. Many blessings to you and yours!
Progress!!!And progress is a great thing in the cancer community! She is responding to treatment and that in itself is the BEST NEWS you can get! So many children are not so blessed to have been found a treatment that their cancer responds to! Tuesday is a miracle and she is one heck of a fighter! Hug her more than ever and live in today for todays tiny miracles! Don’t let your worry and concern rub off on her she needs all the positive energy she can get from you before such major surgeries and procedures! Love her like it is going out of style and she will keep giving you miracles for a long long time! See them and cherish them!!!!
Tons of love coming your way!
Hickeys
http://www.caringbridge.org/visit/brando
Jess,
I am so thrilled for Tuesday (and your whole family)
We will certainly be saying many many prayers for Miss TuTu for, during, and throughout her surgery.
I just KNOW God has huge things in store for your little girl and can’t wait to see all that she will do.
Much love to you always.
Thank you so much for the update. What great news to share, and a beautiful day to celebrate it all.
You and your family are always in my thoughts and I hope with my whole heart more progress, in the leaps and bounds form, continues.
Big hugs to you all, your family and loved ones who have become part of this journey with you.
K
I know I’ve already told you how thrilled I am with the results. She is making great progress and you are all in our hearts and thoughts every day. Stay strong honey.
All the girls will be wearing our shirts on Tuesday
i do not follow any specific faith, but i believe very deeply in something, some being that holds the faith of us all. and i am so glad our prayers have been heard, embraced, cherished and given. your tuesday is a miracle and she has changed my life irrevocably. thank you for sharing and letting us all know that what we prayed for is becoming and still becoming. i know i do not know your family, but finding your family has shifted something in our lives. we continue to hold her in our prayers.
Super Tuesday! Live Strong! God hears our prayers and he loves Tuesday and all of her family. We love all of you more than you know. We will also be praying for her surgeon and all the help in the hospital. Everyone in Conyers will have you in their prayers on Tuesday and everyday.
Love,
Aunt SuSu and Uncle Jim
I am so happy for the good news. Tuesday will be at the very top of my prayer list on Tuesday. Than you for visiting Laura’s page. Hugs and prayers. Carolyn Wing grandma to Laura Stage IV neuroblastoma carepages.com page name LauraVDB
thegrannyblog.blogspot.com
carolyn_wing@yahoo.com
Jess, I will be praying for Tuesday on Tuesday. Sounds like you guys have a miracle baby. Keep us posted on progress. I will be praying!
Heather
Praying for even more miracles tomorrow! Hug, kisses, prayers! Will be anxiously awaiting with high expectations of smooth sailing and the best of results tomorrow! Tuesday is truly a miracle and such a fighter!!! Enjoy that sunshine and huge pile of leaves 🙂
What a beautiful and amazing little girl you have! You will all be in my prayers.
Prayers will be coming from Alabama!
I discovered you and your amazing family thanks to mames tonight. I am in awe at your beautiful little girl’s strength. I don’t follow any organized religion but I definitely believe in the power of prayer. Please know that I will be praying for Tuesday – everyday. I will also pass this on to family and friends. And if you are okay with it I would like to put a link on my blog. Your posts are humbling. I just “met” your family but I am thrilled to read that the most recent results were so favorable.
Thinking of you and praying for you all tomorrow… much love on Tuesday for Tuesday.
XOXOOX
It is almost Tuesday according to my clock and I am beginning the day with a thought and a prayer for sweet Tuesday Whitt. My heart goes to all of you today.
I’m praying for you today. I hope all goes well with the surgery.
Wonderful news! So glad to hear it!
I'm praying for Miss Tuesday today… that all will go well & she'll recover quickly!