Hey you..


Yes, you.  The one sending me strength and prayers of peace and courage.  Thank you.  Your words are priceless.  Your prayers so cherished.  Thank you.  You know just what to say.  Just what we need to hear.  Thank you.  For coming here and lifting us up and cheering us on and holding Tuesday close to your heart.  Thank you.

Today was a good day.  
One day at a time, and today was a good day.  Well, actually it started out as a freaking nightmare, but that is a story Charley should tell because, of course, he makes it sound funny.
But it ended up as a good day.  The jump off the window sill because it’s lots of fun kind of day.
The look at the lights out the window because it’s really cool kind of day.  The go on a wagon ride but really have mom hold me and pull the wagon because it’s funny kind of day.  The “Wow.  She looks really good.” kind of day.  My kind of day.
We don’t know what tomorrow will hold, so I’ll bid you goodnight, thankful for today.
Posted in Uncategorized | 54 Comments

little birds

When I was 10, my dad ordered us some baby chickens for our new psudo ranch in the country out of a a catalog.  Then he built them a pen in our our unfinished basement, with warming lights, food and water, and a little exercise area, courtesy of my brother and me.  This is where they would grow until they were big enough to move out to the chicken coop.  We came home one afternoon to find one of the tiniest chicks, stuck in their water dish.  She has been there a while and was drenched and exhausted from trying to get out.  Broken.  So was I.  I was not going to let this little bird die.  I wrapped it in a washcloth and slept in the basement with her, next to the warming lights that night.  She was better in the morning and went on to live the life that all chickens lived on our ranch, which was a total free range, life of luxury.  You don’t eat your pets.

When I was 16, I was on my way to babysit for some family friends.  A little bird flew in to my windshield and landed on the hood.  Broken, but alive.  I’m not exactly sure how, but I brought the bird into the car with me and took it along to the babysitting job where I nursed it back to health in a shoe box.  A little food, a little water, a little time.  It flew away the next morning when I took off the lid.
I’m 36, and as I sit here watching my broken little bird, struggling in pain in her hospital bed, and I have no idea how to fix her.  She’s on serious levels of morphine and still she hurts.  She’s agitated and confused from the drugs and doesn’t want me to touch her.  I’m broken.  What do you do when you can’t help the little bird?
She started chemo yesterday with the hope that it will work fast than the cancer.  We leave, by ambulance, in 15 minutes to the radiation oncologist where we will begin the mapping for radiation.  Radiation should start on Monday.  Please Lord, get us thru Monday.
This is obviously a very aggressive cancer.  I’m thinking of it as a school yard bully, aggressive but ultimately very weak.  And she is strong.  And so are we.
Posted in progressive disease | Tagged | 68 Comments

The fight is on.

New Chemos  vs.  New Tumor

Heavy Morphine  vs.  Crippling Pain
Will  vs.  Odds
Love  vs.  Fear
All I know, is my money’s on the cute, bald girl.
Thank you all for your prayers.  Thank you, Thank you, Thank you.

Posted in Uncategorized | 27 Comments

Start praying

Back in the hospital. New tumor. Please pray.

Posted in Uncategorized | 92 Comments

Oh! I forgot to tell you!

Tuesday was randomized for a single transplant.  Or maybe, not-so-random-ized.  Hmmmm?

Check back tomorrow night.  I have a little favor to ask you.

Posted in Stem cell transplant | Tagged | 8 Comments