Category Archives: Uncategorized

Home is where I want to be Pick me up and turn me round I feel numb – born with a weak heart I guess I must be having fun The less we say about it the better Make it … Continue reading →

I’m writing from the oncology ward of  Children’s Hospital.  Waiting for the results from our midnight CT scan.  Waiting.  Waiting.  Waiting.  After a week of worsening diarrhea, blood clots and serious pain, Tuesday was readmitted and treatment is on hold. … Continue reading →

“Show marked and significant reduction in tumor burden.” We still don’t know much but “Significant Reduction” tells me it’s time to open a bottle of champagne and start embracing the next step.  Um, yeah, whatever that is.  More as it comes in. Cheers!

Tuesday will have a CT today at 1:00.  The results of this scan will determine our future.  Tuesday’s future.  Please summons all your prayers, healing thoughts and good energy and send them on the breezes that blow directly to The Children’s Hospital. … Continue reading →

I know this title is not funny but it makes me think of a friend of mine, Mason, from high school and it makes me laugh.  It’s refreshing to still want to laugh for no real reason.  Especially after the … Continue reading →