I know this title is not funny but it makes me think of a friend of mine, Mason, from high school and it makes me laugh. It’s refreshing to still want to laugh for no real reason. Especially after the last few weeks. Today Tuesday finished her 10th of 10 radiation treatments. The next step is to re-scan and re-plan and then start radiation again in 10 days at smaller, more precise field. Her Radiation Oncologist told me today that she has had a wonderful response to treatment, which we assumed to be the case based on the way Tuesday has been acting. She hasn’t needed pain medication this week and has been in good spirits. On the other hand, she is throwing up everyday, is down to 18 pounds and is really wiped out. Radiation is doing it’s thing, but it’s knocked her down harder than anything up to this point and it’s really hard to watch. We are really looking forward to the little break. The staff at Anschutz is lovely and caring and Dr. Liu is wonderful, but let’s be honest, it is one seriously depressing place. It is primarily adults. Very ill adults, and watching kids fight cancer is a whole different animal. It breaks my heart seeing so many suffering. Our days start very early, administering IV chemo on the drive in and then holding her while they put her under anesthesia. Every day. It’s just surreal and by 9:00 am, we are already emotionally drained. This has been the most challenging part of her treatment. For all of us. (Minus that pesky 33 days in the PICU) And yet, here we are, keepin’ on keepin’ on and Tuesday continues to surprise everyone. We will be in clinic for chemo (Irinotecan) everyday next week and she will have another CT scan on Wednesday or Thursday. These scans will point us towards our next step. MSKCC? St. Judes? Texas? Vermont? The research continues. We know that right now we are in great hands here. That Dr. Ashley, whom we adore and trust, is working her tail off on Tuesday’s behalf. We know that she and the rest of Tuesday’s team will help us make the best decision for our little girl. We pray that God will continue to use Tuesday to change lives. Inspire and restore hope. Surprise and bring smiles to all who meet her. She’s such a honey. Stay positive with us. Pray. For a much smaller tumor, or heck, no tumor at all. Wouldn’t that be awesome?
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SO glad she’s doing better! We continue to pray for “Baby Tuesday”!
That would be awesome. Tom and I are praying.
Love,
Leah
praying, praying, praying.
praying in the day. praying in my sleep. praying in the morning. praying in the evening.
mostly; believing in things really awesome.
It’s not surprising you can have us smiling with you and then carry that tone in an update that’s filled with hope and miracles. I’m sad to hear how hard radiation is on Tuesday, but am so thankful she’s in wonderful hands.
Love you!
C’mon baby girl, China power unite! (oh nuts, I hope you get that)
It would be awesome!
praying, praying, and praying some more.
The girls will be going away on a retreat this weekend and will be having a chance to get everyone there to pray for Tuesday. So, know there are lots and lots of voices being heard by God for miss tu.
Love you jess.
Not sure where the first one is but have known kids who went to all of the other places. They’re all really good. Of course St. Jude is the one I know best.
Glad you’re getting a break! I can’t even imagine having to watch your child go through all of that…
Know that I’m continuing to pray!
Romans 8:26-27 Likewise the Spirit also helpeth our infirmities: for we know not what we should pray for as we ought: but the Spirit itself maketh intercession for us with groanings which cannot be uttered. And he that searcheth the hearts knoweth what is the mind of the Spirit, because he maketh intercession for the saints according to the will of God.
Prayer Bears
My email address
Tuesday has changed lives. Tuesday will continue to change lives. The amount of hope, trust, inspiration, and above all, faith that has occurred because of this child is nothing short of a phenomenon. She will continue to do great things…
Don’t be so modest JK, Tuesday isn’t the only Whitt that is amazing! She is drawing her strength from her family and you guys have been there giving her strength every step of the way! We will absolutely keep praying for no tumor, with faith that God can do that…it is not too big of a request for him. Love you guys!
Erin
ps – yes Lisa, China powers unite!!! LMAO!
Amazing indeed! That little girl has touched so many people and will for a very long time! It is so good to “hear” the positive tone in your writing! Stay strong! There are so many people praying for little TuTu!
My little guy is a patient at MSKCC… they are wonderful. We just got the news on Tuesday that his chemo is not working the way we want it to and is causing neuro-toxicity issues so we are meeting next week to discuss a g-tube placement and different chemo meds. This is by far the hardest thing we have ever gone through. I am so glad that Tuesday seems to be responding to radiation. It is so unfair that the treatment for these horrendous diseases is so hard on these kids. I will be keeping Tuesday and your family in my prayers and should you have any questions about MSKCC please do not hesitate to ask away. Hugs, prayers and hopes sent your way
~~Chrissie
Your story, your family has already changed my life. I will hope and pray for the best miracle there is. You are BOTH phenoenal, and I know you don’t bring the rest of the family in to the blog much, but I’m sure the rest of your family is just as amazing too. How lucky Tuesday is to have such a loving mother, how lucky you are have to have such an inspiring child.
We’ll pray for the best. Awesome is a good word!!
Ya’ll are on our hearts in Texas. We will keep praying for your whole family… We know how hospitals just seem to discourage…but we are so glad there is hope!!! The Lord sure has a deep and unique purpose in Tuesday’s little life. She is amazing. We have just fallen in love with her through the blog (and Matt and Amelia stories).
God Bless,
James and Anna Conner
You have one amazing little girl there, which can only stem from one amazing set of parents! She has touched so many lifes and continues to be an inspiration to so many of us! Praying for Tuesday and all of you.
Praying for you all.
I can’t imagine how difficult these last weeks have been, the grueling routine of it all… Your strength is inspiring. Tuesday’s strength is inspiring. I’m so thankful there is a God that is that powerful.
You dont have to even ask, we are praying and praying, i swear GOD is hearing TUTUs name over and over…. i so think of you all the time. LOVE
Enjoy the break. Stay strong and keep fighting. We are praying for Tuesday, for you and your family with lots of love and hopefulness in our hearts.
Oh I am sooo happy that she is doing so much better!! Praying praying praying for NO tumor!!
Love you!!
Christy
It would be so awesome if the tumor were gone! We’re praying for that every day!
thinking of you all….!
We are always praying!I am in much anticipation of those scans. They have to show good things!
Also Lisa is a huge DORK!
Praying always! Tuesday may be only 18 pounds but good things come in small packages. And she’s one amazing little girl. I’m in awe of her every single day. I’ll be anticipating the results of her next screens. Love you all! xoxox
This break will do her good, give her lots of cake and goodies. At least that what I would do! We all continure to pray daily for Tu and all of you to have the strength that you need to get you through this.
My code is 'fastat', I will take that as Tuesday will be 'fastat' recovering from this mess!!!
love and hugs,
Patti & the Correa Bunch
I heard that, Shar!
Still praying for you strong little girl! Thankful for the “break” you are all getting now.
I am so happy she is feeling better. You know we are praying for you all everyday!
The prayers for Tuesday flow from my heart endlessly. And you know what is awesome? You. And your Tuesday. And her ability to make life seem so much shinier and precious and, yes, fragile, than it did before we met her.
I pray fervently from the depths of all that I have for continued advancement towards being finished with this caner. I pray that all forces of good, God and angels and benevolent faeries, hold her as she endures the continued treatment. and I pray that they hold you too as you endure with and for her.
And always let us know what else we can do. i wish there were no distance between california and colorado. And I love that you have a friend named Mason that made you laugh. My twin boy is Mason too (Macie) and he makes me laugh everyday.
Your blog always leaves me in tears! You are an amazing person and have so much strength! Its where your amazing lil girl gets it. I am praying everyday for you guys! And I agree with what Bre said, good things come in small packages! Fight Tuesday Fight!
All my prayer to the Whitt family!
Thanks for the update. She is such a sweetie and a fighter. LMAO at Lisa. 18 pounds!? She just wants to be petite like Kalia and Sofiya. 🙂 Keep on keepin on.
I’m so glad for an update – stay strong, stay positive. We love you guys!
NO tumor NO tumor! please Lord, NO tumor!
Well if the measure of good writing is to make your mother cry, you are on your way to a Pulitzer Prize!
Thinking of you JK and little Tuesday. Sending lots of hugs and love to all of you!
Love,
angela fontenot
I would sure say it is “Friend more than Foe!”
Tuesday is an real fighter and your fam as a whole, WOWs me.
I am sending you all my positive vibes!
Love,
Mason
I have a cousin who is going through radiation and chemo for her own brain tumors. She named them “Gone” and “going away” to help start visualizing them going away during her treatments. Tuesday maybe a little young for this, but I thought it might make you smile.
I had a dream about little Tuesday, we were opeining Christmas gifts, she got me a princess Belle potatoe head (not even sure that exists..) But it was happy and peacefull and reminded me to pray harder for a little girl I’ve never met but has touched me so deeply.
The Lord knows all the “whys” in our lives. Trust Him! Praying!
Proverbs 3:5-6 Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths.
Prayer Bears
My email address
Rest up little Tuesday. Warriors need their strength too. You have a whole army behind you and we are all praying for you and will raise up to help in any way we can. Rest up too mom and dad I know you need to recoup to help fight with Tuesday. You are doing an awesome job with not just Tuesday but with Spencer, Axel and Piper too. We are so very proud of you and are happy that you are in our family. Take care of yourselves and do not hesitate to call on us to help if you need us.
We love you all,
Aunt SuSu and Uncle Jim
Good luck this coming week hon. I hope you get fantastic scan results. Big hugs.
Hi, Jessica~
I’m so glad to hear that things have improved–no pain meds–amazing! I’m also glad and comforted to hear that you are researching and planning for the next step. You are doing a great job! Even though you deserve it, with this disease, there is no time to rest.
Keep up the good work with Jesus leading you, moment by moment.
With much love and hope, and
In His Grip~
Kelly McCord, NB mom
We will keep Tuesday in our family’s prayers.
Well, I’m just so proud of your little “Honey.” How wondeful to be so small and to have such a BIG impact on the world. Continued prayers for Tuesday and the rest of the fam.
Always here praying!
Luke 4:18-19 The Spirit of the Lord is upon me, because he hath anointed me to preach the gospel to the poor; he hath sent me to heal the brokenhearted, to preach deliverance to the captives, and recovering of sight to the blind, to set at liberty them that are bruised, To preach the acceptable year of the Lord.
Prayer Bears
My email address
Tuesday is amazing! I am so glad she is doing well. I am praying for no tumor!
Hugs to all!
ps, I just looked over Tuesday’s pics again and she is just beautiful. Beautiful smile, beautiful eyes, beautiful skin and the best shaped head I have ever seen! Simply Beautiful!
That WOULD be awesome!
So glad that she’s doing better and that she’s receiving such great care. Praying for great scans this week. Hang in there!
Glad to hear the update. Memphis is only three hours away from my house. St. Jude is GREAT!
We have such amazing eyewitness testimony of Jesus and just a fraction of what He did while He was visibly present here on earth. Look only to Him! Praying!
1 John 1:1-4 That which was from the beginning, which we have heard, which we have seen with our eyes, which we have looked upon, and our hands have handled, of the Word of life; (For the life was manifested, and we have seen it, and bear witness, and shew unto you that eternal life, which was with the Father, and was manifested unto us;) That which we have seen and heard declare we unto you, that ye also may have fellowship with us: and truly our fellowship is with the Father, and with his Son Jesus Christ. And these things write we unto you, that your joy may be full.
Prayer Bears
My email address
now and forever the highest compliemnt I pay to someone will be “your such a honey” and I will think of Tuesday when I bestow it upon someone. such a sweet soul and so glad that EVERY tuesday I stop and say a prayer for tuesday and you…. so thank you for that thought.
There is an article in the February issue of Parents magazine about the best children’s hospitals. Maybe you already know all the information presented in there but wanted to share that.
Praying for Tuesday on Tuesday and any other time I think of y’all.
May the Lord wrap His loving arms around you! Know I’m praying so at this end!
Nahum 1:7 The LORD is good, a strong hold in the day of trouble; and he knoweth them that trust in him.
Prayer Bears
My email address
Continuing to lift up prayers!
Psalms 34:17-19 The righteous cry, and the LORD heareth, and delivereth them out of all their troubles. The LORD is nigh unto them that are of a broken heart; and saveth such as be of a contrite spirit. Many are the afflictions of the righteous: but the LORD delivereth him out of them all.
Prayer Bears
My email address
I pray the results were good and the tumors were smaller and yes possibly even GONE. EVERYTHING is possible with the Lord!! I hope she is still doing well. :o)
Still praying for all of you.
HUGS,
Gina Marie
My Family and I have been following Tuesday and your Family since the beginning. My sister passed away 4 years ago so we understand what you are going thru My Husband was the one who donated the Painting for the auction Debi did…
Anyway, I read today what you were saying about the facility and how its mostly Ailing Adults etc…very kid unfriendly.
I know its not my place to question but I was just wondering if you might look in to St Jude Childrens Hospital (stjude.org).
I know it would mean you leaving with Tuesday to go there for a while but they have a kid and Family friendly place and they are doing State of the Art treatments and Research especially in the are of Neuroblastoma. They also dont charge you for anything your insurance does not cover.
Lastly, I wanted to share a song with you that my mom shared with me yesterday when we were praying for Tuesday you can find it here:
http://www.youtube.com/watch?v=8MZGGUq-jmA
Your Family is never far from our thoughts although we are perfect strangers…
Keep fighting the good fight lil’ Tuesday!