Thoughts from the week after

2-6-09


Things I know:

Sometimes kids get cancer.

No child deserves to get cancer

It’s not because any of us did something wrong.

Or didn’t do something right.

God does not give kids cancer.

Or Anyone else.

There is still no cure for cancer.

My children, your children, can find the cure for cancer.

Tuesday will be their muse.

She will be a muse to many.

She is my muse.

Tuesday changed lives.

She will continue to change lives.

Our family is better because of Tuesday.

Oh, how we miss Tuesday.

Our family will always feel that hole.

Our family is still whole.

We will know joy.

We won’t forget.

Being Tuesday’s mother is my most humbling honor.

Being Spencer, Axel and Piper’s mother is my great reward.

Charely.  No words.  I love you.



2-09-09


Now what?  Wake up.  Did I sleep?  Just get out of bed.  Boys to school.  Watch Piper try on Tuesday’s hat and shoes.  I can’t do this.  I can do this.  Eat a half bag of chips.  Eat four cookies.  I think I’ve been staring in to the pantry for a very long time now.  Maybe I’ll take a bath.  I don’t think this water is hot enough.  Look at all these bruises on my legs?  Why the hell do I have bruises all over my shins?  Do Not get out of the bath to Google ‘bruises on legs + cancer’.  People (me) get bruises all the time.  It’s not cancer.  My God, why am I letting my mind play tricks on me like this?  Get out of bath.  Draw the curtains and get back in bed.  Maybe I’ll watch tv in bed all day.  Nope.  I hate this too.  I can’t think.  I don’t know how to get out of my room.  Charley comes for me.  He doesn’t have any idea either.  We cry.  I’m sore from crying.  I didn’t know that could happen.  He hugs me.  He will get me thru this.  I will get him through this.  The boys are home.  Piper is awake.  Breath.  They need us.  They need me to be a safe place.  Not more pain.  

Someone is laughing.

Go.

Enjoy them.



2-11-09           


Today I invited S and K over.  I don’t remember what we talked about but I heard Piper giggle for the first time in ?

We took the girls to McDonalds.  (Everyone’s favorite haven to grieve)  I saw an old/good friend and cried in the play area.  Ran in to someone else in the bathroom who didn’t know.

I told her my daughter died from cancer last week.


It’s a start.



2-12-09


I’m jolted awake to a phone call at 6:30 this morning.  My heart is racing.  I thought something happened to Tuesday.  

It was Wesley from Coffee Cabin (greatest tiny coffee joint in the world!) talking about a fundraiser and Children’s Hospital and $1,007 and Tuesday’s memory and would I take a ride with him to deliver the check to TCH and since I was half asleep, I said Yes and that I’d be there in 15 minutes.  I pulled on some jeans, brushed my teeth and grabbed some photos– got in the car and started to freak a bit.  I wasn’t expecting to back to the hospital this soon, but in this new life of wasn’t expectings, you find yourself just doing.  

Wesley is fabulous and so is his wife, Kristy.  They fed me a coffee and Wes fed me with stories on the drive in, of customers, and friends who have recently lost and are in this grieving process.  A strange and comforting connection to our community and, well, humanity.  I’ve connected with people when new lives were unfurling, but never shared this sacred bond of knowing the unimaginable pain of the end of a life of a beloved.  

Once we got to Children’s and I saw the lobby filled with the live broadcasting of the Alice 105.9 radio show, I was able to get lost in the commotion of the cause and the curing and the healing and the hope going on around me and it felt safe to be there again.  Among our new family.  SO many hugs and kind words and genuine concern and love for my family and admiration for our lovely Miss Tuesday.  Wesley gave their generous donation and I was asked to do an interview.  I agreed.  I had no idea what I said until I heard it replayed later that day.  The DJ’s (are the still called that?)  told me that the phones started ringing off the hook after I told Tuesday’s story and that they would be re-running my interview.  

Today’s tears felt different.  Purpose.  Something good this way comes.

Thank you, my sweet Tuesday.

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156 Responses to Thoughts from the week after

  1. jenn says:

    There are no words…

    Just thank you for sharing.

  2. Courtney Kay says:

    Praying for you

  3. Jennifer B. Davis says:

    Someone I follow on Twitter pointed me to your story. Your poetry is beautiful. Your attitude is incredible. Your children are very lucky to have you as their mother. Prayers to you and your family!

  4. mrs boo radley says:

    Thanks for sharing your thoughts with us.

    We will share prayers with you.

    xo,
    Leah

  5. Lindsay says:

    Jessica,
    So nice to hear what I am going through from someone else…. Hug those sweet kids of yours and I will pray that Tuesday and Avi meet in heaven soon…..
    Lindsay

  6. Denise says:

    I am keeping you and your family in my prayers. Thank you for this post.

  7. onemorebaby says:

    Hang in there . It does get easier… it does not go away/get forgoten but it soes get manageable. There are many, including me, that will always keep you and your ENTIRE family in our prayers. May this love lift you up.

  8. Alex says:

    I cry for you. I could possibly be crying more than I’m praying for you and your family, but that’s probably not at all possible.

    Thank you for sharing. Tuesday has changed me. My best friend, Korrine, has also changed me. At 14 years old, she died from choriocarcinoma last October (’08).

    My prayers and love are for you. God Bless,
    Alex Accornero from CA

  9. Katie says:

    I am weeping for you tonight. I pray for your family daily. I’ve been praying since shortly after sweet Tuesday’s diagnosis. Thank you for sharing your daughter and your story.

  10. TUTU Monkey says:

    No words..((hugs))and know you are in my prayers

  11. Tamara Mitchell says:

    Thank you for sharing with us! Praying for you daily!

  12. BoufMom9 says:

    Jess…
    Your words, your love, your light… I am telling you, you will MOVE MOUNTAINS!
    Tuesday is our muse, and you are her voice. ALWAYS MY BEAUTIFUL FRIEND.
    I love you and think of you always!

  13. Lynn says:

    Powerful update
    Still here praying as always!
    1 Corinthians 15:55-57 O death, where is thy sting? O grave, where is thy victory? The sting of death is sin; and the strength of sin is the law. But thanks be to God, which giveth us the victory through our Lord Jesus Christ.
    Prayer Bears
    My email address

  14. Kacey R. says:

    Praying for you and your beautiful family.

  15. Dan River Mama says:

    I do not know you. I won’t pretend to know how you feel. Just to imagine, literally makes my chest ache. As a mother and as a human being, I want to reach out and comfort you in some way, but I simply can’t find the words.

    Beautiful Tuesday has touched so many and brought an awareness to others of just how fleeting time can be and a reminder to savor every moment with our children.

    I am in awe at your strength I lost my father to cancer when I was very young. I thought I might die with him, crushed by the weight of my grief. But even that doesn’t compare to the pain I feel when even thinking of losing one of my children.

    Just please know that the prayers, love, and tears, of countless people are with you. Including mine. God bless you and your family.

  16. L I S A says:

    Can’t believe we were in CO a week ago. I miss you and think of you throughout the day. Please let me know if there’s anything I can do to comfort you.

    It’s good to have a purpose. Good to channel your focus and energy onto something esp for Tuesday. You’ll find it, I’m sure of it because of who you are.

    xo
    lisa

  17. Paige says:

    Thank you for sharing. You are such an incredible woman. I cannot even tell you the thoughts that were going through my head while reading through your blogs and your newest one.
    Praying for your family in Kentucky.

  18. purplemoose says:

    Thank you for sharing your heart with us. We are praying for you and you can do this. I am also amazed that you went to the hospital, did the interview. I wish I could have heard it! Praying you all rest well tonight.

  19. grandma mac says:

    Your honesty and heartfelt words deeply touch us all, we are continuing to keep you in our thoughts and prayers….Stay strong (sounds so condescending) but take care of you and your family…..and again, thank you for your “thoughts”, you are helping many, many people…….

  20. Catherine says:

    Just found your blog today via another mom blog and I just wanted to say I’m so so sorry. Sending you and your family here and Tuesday in Heaven our prayers. Really no words… thank you for sharing your story.

  21. Gill says:

    praying for, crying with. Love and blessings always.

  22. Aunt SuSu says:

    Jess, You and Charley are the best parents I know and Tuesday is an inspiration to everyone that has heard her story or seen her face. You will never forget but you will heal and in doing so you will heal the hearts of others. You were so very lucky to have had Tuesday and so very lucky to have Spencer, Axel and Piper.
    I know that all of you will find peace in your lives again and Tuesday will be there smiling that you have. We love you and always have you in our hearts.

    Love,
    Aunt SuSu and Uncle Jim

  23. Anonymous says:

    Dear Lord Jesus keep Your arm’s of compassion and love around JK, Charley, Spencer, Axel and Piper. Give them the strength to go on when their feet are to heavy to move, give them Your breath when their hearts are to heavy breathe.
    Help them to find joy. Amen
    Love Jenn H’s mom

  24. Kate Troxell says:

    You are amazing!

    prays

  25. The Myers Family says:

    Thanks for sharing..you are an amazing & brave woman! I'm praying for your family!

  26. Kristy says:

    Oh, Jess. I woke up this morning to find this wonderful post from you. I’m wearing my Tuesday necklace today. Today, Valentine’s Day, is about love. One week ago I experienced more love in one room than I knew what to deal with (thank you Tuesday). Tuesday IS love. So many people already know, and so many more will come to know…her love, and your love for her and for your family. Thank you for sharing your thoughts from this past week. I’ve been thinking about you every single day. Love to you today and always.

    Kristy, Dan, Jack, Sawyer, Amelia

  27. Coffee with Cathy says:

    We are thinking of your family today and always. Thank you so much for opening your heart and bringing us along on this journey with you. It’s made such a difference to so many people.

  28. Kelli says:

    Speechless. God bless you.

  29. 6hebrons says:

    Thank you for those true words. My hearts aches for you and your family. I will continue to pray for you.

  30. Terri says:

    Absolutely beautiful, Jess! I have no words! You are an inspiration to me and my family! Tuesday has touched us in so many ways!
    Praying for you and your family everyday!

  31. MHL says:

    Jess and Charley-
    Thanks for sharing your story. You guys have always amazed me with your humor and loveliness, and these past few weeks are no exception. You are a light in our world. Tuesdays journey is so meaningful. She is a beacon of light and love in the universe.
    If there is anything… well you know!
    Lots of love,
    Marne

  32. Becca says:

    Ralph Waldo Emerson said, It is not the length of life, but the depth of life. And Tuesday, sweet, sweet Tuesday is the person that really gives that quote such meaning. Bless you and thank you for sharing part of her with us.

  33. BlogBaby says:

    Jessica Kate you are loved.

    Sink into that love whenever you need to.

    We are praying endlessly for you. All of us. Repeatedly, purposefully, fervently praying.

    BlogBaby

  34. Whimsical Creations says:

    hugs

  35. Anonymous says:

    god bless you and your family! your children are truly lucky to have you. Tuesday has touched so many:)

  36. Natalie Porter says:

    You are a strong and inspiring woman. Your family is lucky to have you. Tuesday was lucky to have you.

    We are praying for you here in Ontario, Canada daily. Keep strong,

  37. The Eadle Family says:

    I am constantly thinking of you, and your beautiful family. You will all forever be in my prayers.

    I want you to know that Tuesday’s life does, and still has a purpose, and Ryan and me are excited to come to the states and help you with a fundraiser.

    I love you, Jess. I hope a day comes where you can get out of bed and not hurt.

  38. A little piece of 7th heaven says:

    I am so sorry for your suffering..
    prayers for you and your family!
    You are inspiring..

  39. Tamara aka Cheapskate Mom says:

    I'm praying for you. Your strength is amazing. When I lost my dad suddenly from cancer, it was hard (no words can really describe it and hard seems like such a weak word to use) Losing a parent is nowhere near as difficult as losing a child. After I lost him, the only thing that drove me was giving his death purpose. I did everything I could to make sure he did not die in vain. Honoring him was my strength and driving force. So I know how hard it is to get up but when there is a way to keep their name alive you find a way to do it.

    What you said about brusies and cancer struck a chord with me. I watched him take his last breaths (I had never witnessed anyone pass before) it was the hardest thing ever (again no good words to use) He had liver cancer and only found out a week before he died. He never drank never smoked. It is almost 2 years since I lost him and to this day if my back aches I fear it is cancer. If I'm overly tired, maybe cancer? I know it is silly but this cancer thing is hard to ignore, esp when it keeps taking away the ones you love.

    Your daughter continues to touch lives. I have been sharing her story with everyone I know. My 87 year old grandma (my dad's mom) was so touched by her story and was delighted to hear about the balloons. I shared Tuesday with our church too. We are all praying for you & your family.

    Tamara

  40. samantha says:

    I do not know you but my heart continues to hurt for you. You are a special Mom. People all over the world who may or may not have experienced this are blessed by your family and sweet Tuesday.

  41. Sadiebug and her Mom says:

    We don’t know each other, but if I had been that person in the bathroom I would have given you a huge hug. Tuesdays will never be the same. What a beautiful little girl with an incredible family. Laughter will come back. It will.

  42. Rachel says:

    I promise, one day it won’t hurt so bad to get out of bad. One day you will look back with a smile and not tears. One day…

    The pain still sets in, it still feels like yesterday even years later but when you think of Tuesday, you’ll think of her with joy because of all that she did in her short time here. The world will never look the same.

    Thank you so much for writing and sharing.

    Carry her memory and be her voice. She is still with you and you can do great things with everything you learned through Tuesday.

    Thoughts and prayers with you, always.

  43. Anonymous says:

    I have been reading your blog and hurt deep inside my being for you as a mother and for your children and husband. I know the pain so well of loosing a child but the pain is so unique to each of us, As you write you put into words so often how many of us feel we are up, we are down, we feel defeated, we feel like we can do anything after this loss. But for me I felt guilty at times for feeling better. I hated feeling good after watching my precious daughter leave this world when I know she would have done great things. Well the fact of the matter is she did do great things! and Tuesday did great things and because of you her MOMMY she will continue to do great things. Thank you from the bottom of my heart for sharing her life with so many of us we are inspired by you! God Bless

  44. Holtan-Bates family says:

    I cannot help myself from going to your blog page everyday. Your family and your story have just etched itself into my heart. Tuesday’s story keeps us all more grounded and appreciative of the little things. God bless. . .

  45. Sharlene says:

    Sitting here. Watching Backyardigans. Drinking coffee. Reading your post. Sobbing uncontrollably. Thanking God you are my friend.

  46. Anonymous says:

    Beautiful.

    You are just who God intended you to be – so just be whatever you need to be as you navigate through the first weeks with Tuesday in His arms.

    Know that love and prayers flow all around you. Carmella

  47. Rachael says:

    thank you for sharing your heart, your honesty, your rawness…thank you for sharing you. i am saying prayers for peace and for comfort.

  48. Laurie in Ca. says:

    “Along unfamiliar paths I will guide them; I will turn the darkness into light before them and make the rough places smooth. These are the things I will do; I will not forsake them.” Isaiah 42:16

    May you feel Gods loving and protective arms of grace and peace holding you today and all the days ahead. I am so sorry for the pain you are feeling, oh so sorry. I will be praying for you for a very long time as you make your way through this heartbreak, moment by moment.

    Love and Many Hugs, Laurie

  49. Jennifer L says:

    Your words are so simple and hold so much meaning. They are beautiful. Thank you for sharing.

  50. Britney Jones says:

    Your thoughts are so real and honest, thank you for sharing them with us all… for sharing Tuesday with us all. She, and your family, have touched so many!

    Continued prayers from Texas!

  51. nikki says:

    Thank you for sharing your thoughts and feelings. Praying for you.

  52. Barbara Manatee says:

    Tuesday will certainly be the muse to many – she will live on in so many people’s hearts. Thank you for sharing her with us. As always, you’re in my thoughts…

  53. Stacy says:

    I have thought about you and your sweet family every single day since losing Tuesday. My heart aches for you and I don’t even know you, but I do know that your story has made me hug my two young children tighter each day and love them even more (if that’s even possible) and to be so very grateful for each and every moment I have to spend with them.

    There is another couple, who I found through a friend’s blog, who lost their 11 month daughter, Cora, to neuroblastoma last Sunday. She died two weeks after she was diagnosed. I know if anyone can relate to their pain, it’s you. I’m attaching a link to their blog with hopes that maybe you can be in contact with them and maybe you can offer support and encouragement to one another. I wish there was something I could do for both you and Cora’s parents, but all I know to do at this moment is pray for you both and that is something I will continue to do. God Bless you and your family.

    http://themcclenahans.blogspot.com/2009/02/cora-is-with-jesus-today.html

  54. ScrappinAway says:

    Thank you for sharing, it was beautiful. Just keep on keeping on! And I will keep on praying.

  55. Chrissie, Christine, Chris, Mommy, Mama, Maaaaa... says:

    Jessica,
    You are such an amazing mom. I know that staring in the pantry feeling, that surreal, is this really happening? Is this how it is going to be from now on? You know that my Mikey is fighting the fight against cancer and I hate it. I hate that cancer comes into families and does what it does. I hate that cancer took Tuesday’s body from you… but I know that God will never let her spirit leave you. She is still with you in every laugh and every tear. My thoughts and prayers are with you Jessica. Sending hugs to you.
    ~~Chrissie
    PS – I still have your phone number from your blog comment. Would it be ok if I got in touch soon?

  56. Standing in the Rain says:

    there really are no words. but i thank you for letting us in. for sharing your life and tuesday’s life. she will not be forgotten.

    god bless. may you feel peace today.

  57. Bee and Rose says:

    Thank you for sharing:) We are here wrapping our “virtual” arms around you and your family in endless hugs.

  58. Fairy Princess Garden says:

    There are no words I can share to shed your pain. Thanks so much for sharing your journey with us. Perhaps it will prepare others in need. Your TUESDAY and your journey have forever touched my life.. HUGS

    http://thefairyprincessgarden.blogspot.com/2009/02/just-tuesday-break.html

  59. The Morris Family says:

    Twins…neuroblastoma…grieving….I am here if you need another mommy that knows!
    Cindy

  60. Sassypants Wifey says:

    I can only offer prayers and a virtual hug. I wish you continued strength.

  61. Marilyn says:

    I don’t really know what to say because there are just no words…my heart aches for you and your family.
    Not only is Tuesday my new muse, but you are too.

  62. MamaBriggs says:

    You are strong and amazing…
    Love,
    Melissa

  63. Sheri says:

    I listened to the broadcast for a couple of hours,hoping to hear your interview, but didn’t. I did get to see Tuesdays picture on the live broadcast. How awesome. How brave of you to return there so soon. You are a wonderful wife, mother and friend.

  64. Anonymous says:

    You know, I can’t even recall what one person led me here those months ago, because I got several pings pointing me to this site.Your words have touched me, and so so many. Real,emotionally charged, gripping,searing,raw,happy,sad,celebratory,innocent,inquisitive,doubtful,hopeful,prayerful.I hope, someday that you will publish this journey.One that nobody wants to walk,yet when forced to ,desperately in need of a docent.I will continue to check in ofen, keeping your family close in my thoughts, always.

    ~~~~Donna

  65. Anonymous says:

    i want you to know that right down highway 83 is a prayer partner. I found your blog right before Tuesday went to play with Jesus and I am praying for you moment to moment. thank you for updating! It keeps me praying specifially for your needs.

    Blessings from Monument!
    bridget

  66. Christy says:

    I can’t even begin to express how strong I think you are. Seriously the strongest person I know. I pray so hard for the day that you all don’t hurt so much. Tuesday will FOREVER be with me. FOREVER.

    Love you always!

  67. jenn t says:

    could you be a more wonderful writer?! and could your family be any more wonderful? i don’t think so. it was so amazing to hear you talk on the radio the other day — i caught it the minute you started and cried wonderful tears.

  68. Samantha says:

    So heartbreakingly beautiful… thank you for sharing.

    I bought a Tuesday pendant necklace today. It will be used as a reminder of all that Tuesday has taught this stranger in California. I will wear that pendant around my neck every day and reminder who it was that made me a believer in God and in Heaven, who made me begin to understand the depths of such a loss, and cherish every single breathing moment I have with my children and who has made me a better, more loving, affectionate, appriciative mother and twin sister.

    Knowing your story has made me a better person.

  69. Anonymous says:

    Your words are beautiful and you are an amazing mother. Sweet Tuesday will always be loved.

  70. mommaof4wife2r says:

    still praying diligently for you.

    wanted to let you know that tuesday touched so many people…and still is working mightily in lives.

    my fam is honoring her in some new ways for us…we joined project hapy hearts honoring tuesday.

    http://rdehaus.blogspot.com/2009/02/project-happy-hearts.html

    i know it’s not much, but i thought you would want to know that you all are making a difference and your faith and strength and honesty makes you, well real. thank you.

  71. Lauren says:

    I still find myself coming back to your blog daily and crying with you while reading. After reading 2/12/09 I thought I would send you this link. I don’t know if you already know this person, I don’t, just another blog I came across from the friend of mine who has had a sick child…just like I came across yours. I wanted to send it to you because I know if I were you I would possibly want to know this person too. To you and your family, be well, find hope, continue….http://themcclenahans.blogspot.com/

  72. Beth says:

    Continuing to pray for you and your family! You are in our daily thoughts! There really are no words. God bless!

  73. Nancy says:

    Ah, Jessica.

    Powerful. Poignant. Having lost a 6 year old niece, I have some glimmering of your pain. Still…I cannot fathom losing MY child. Hugs to you all, and prayers, as well.

    Nancy

  74. The Beaver Bunch says:

    Thank you for sharing.

  75. Laura says:

    Your courage and strength simply amaze me……I think of your family daily.

  76. Christina says:

    Thank-you soooo much for sharing your story. You have touched so many lives. Tuesday lives in each of us, even us who never met her. (((hugs)))

  77. Belle's Blog says:

    I have you on my mind…. ur family is in our prayers and thoughts. God bless you today!

  78. * TONYA * says:

    Tuesday will be a muse.
    You are an inspiration.

    You will get through this honey. I think of you all the time. Much love to you and Charley and the kiddos.

  79. MarvelousMOM says:

    You and your family are still in my heart. Tuesday will be remembered. You are a very strong incredible woman and mother and I admire you.

  80. Shannon says:

    Thank you so much for sharing your heart with us. You have such a beautiful, simple way of expressing such profound thoughts. Thank you for that. Thank you for Tuesday. She won't be forgotten.

    Love & hugs to you and your family!

  81. Lynn says:

    Praying right now!
    Psalms 121:1-4 I will lift up mine eyes unto the hills, from whence cometh my help. My help cometh from the LORD, which made heaven and earth. He will not suffer thy foot to be moved: he that keepeth thee will not slumber. Behold, he that keepeth Israel shall neither slumber nor sleep.
    Prayer Bears
    My email address

  82. Deb says:

    My first time here – and I stayed for a while. My heart goes out to your entire family. I am glad that you are surrounded by a loving community. Wish I could do more but I am praying hard and sending them your way. Take care.

  83. Deb says:

    I pray for your family and hold you close in my thoughts!

  84. morewineplease says:

    I am so glad you were able to do the interview. YOu are constantly in my thoughts and praying for your strength and comfort!

  85. Anonymous says:

    Dear Family of Tuesday: I can honestly say that I’ve never been more touched by such beautiful writings. I am the mom of Darren, a dear friend of Wintry. I’ve embraced your family since July. I have five beautiful granddaughters and while I can’t wrap my brain around your pain I do ache for all of you. I donated to the neuroblastoma fund and also purchased a Tuesday necklace, both in her honor…a sweet baby I never had the privilege of meeting but who has touched my heart forever. I shall wear my necklace proudly. Jessica, you should write a book in Tuesday’s honor with all of your journaling. You have such an incredible talent with words. “When tomorrow starts without me, don’t think we’re far apart. For every time you think of me I’m right there in your heart.” Blessings of love and prayers to all of you. Carol in Cave Creek, AZ

  86. mames says:

    the strength you have, the words you share, they continue to have a powerful effect…on all of us. my thoughts and prayers go to you as always. so glad that you heard piper laugh. so glad you went to the hospital.

  87. Katie says:

    Still praying for your family.

    Your Tuesday is already my muse. She helps me to remember how precious life is.

  88. LT (and Max) says:

    i have been following your blog i think your strength is amazing.

    i’m running in the country music 1/2 marathon in nashville. i’m raising support to help the Leukemia and Lymphoma Society. I found myself becoming more and more passionate about finding sponsors after reading about your sweet Tuesday.

    there’s no doubt in my mind that i’ll think of your sweet angel while i’m running in April.

    God bless you.

  89. Katy says:

    Honey, I’m so sorry. May your pain go away. I don’t understand all of this as I’m sure you don’t either.
    More prayers headed your way.
    Hug those babes of yours.

  90. Lynn says:

    We sang this hymn in church today and it really touched my heart. Wanted to share it. Am here praying!

    1. Speak, O Lord, Thy servant heareth,
    To Thy Word I now give heed;
    Life and spirit Thy Word beareth,
    All Thy Word is true indeed.
    Death’s dread power in me is rife;
    Jesus, may Thy Word of Life
    Fill my soul with love’s strong fervor
    That I cling to Thee forever.

    2. Oh, what blessing to be near Thee
    And to hearken to Thy voice!
    May I ever love and fear Thee
    That Thy Word may be my choice!
    Oft were hardened sinners, Lord,
    Struck with terror by Thy Word;
    But to him who for sin grieveth
    Comfort sweet and hope it giveth.

    3. Lord, Thy words are waters living
    Where I quench my thirsty need;
    Lord, Thy words are bread life-giving,
    On Thy words my Soul doth feed.
    Lord, Thy words shall be my light
    Through death’s vale and dreary night;
    Yea, they are my sword prevailing
    And my cup of joy unfailing.

    4. Precious Jesus, I beseech Thee,
    May Thy words take root in me;
    May this gift from heaven enrich me
    So that I bear fruit for Thee!
    Take them never from my heart
    Till I see Thee as Thou art,
    When in heavenly bliss and glory
    I shall greet Thee and adore Thee.

    Prayer Bears
    My email address

  91. Kj says:

    Thinking of you and your family often. Sending on healing prayers.

    And others are right. Tuesday is a muse to many; and you — an inspiration and light.

  92. cat says:

    Thanks yo so much for these honest, raw words. We are praying for you constantly and it is good to really know how you are doing.

    Love and light to you.

  93. Anonymous says:

    I continue to pray for your family. I saw where someone left another blog of a family and how I don’t wish for any of you to be in that group together, sometimes I think there are power in numbers. I will leave another family’s website for you (when your ready) that I have been praying for – the mother is so honest about her emotions in this journey.

    http://ashleybroach.blogspot.com/

  94. The Romero-Schroeder says:

    Honey, Sharing your pain. Been there done that. LOVE TO YOU ALL

  95. Kerri says:

    Thank you for sharing your grief with us. I hope healing comes with the sharing. I am praying for you and others who are going through a similar time right now. If I were you, I would’ve stayed in bed, in fact I would probably still be in bed. Your kids are lucky to have you. Keep holding on and jsut do the best that you can. (great big hugs)

  96. Heather of the EO says:

    It says “Tuesday” on the dry-erase board on my fridge. It will stay there. I open the fridge for a thousand snacks, a cup of juice, a carton of milk, and I stop and I pray for you and yours and then I’m changed. Every day. Tuesday continues to change this life even though I never met her.

    Thank you for sharing your heart. It’s a beautiful thing.

  97. Jessi says:

    *hugs*

  98. Debbie says:

    Your post is heart-breaking!

    My prayers are with you as you try to..get a handle on the…new now!

    There are many of us who have lost a child..There is no comfort in that for you I know. The memory of my own loss floods back as I read about your own.
    Thank you for sharing Debbie in Ma.

  99. Jane says:

    I hope you will write a book, your words are incredible. I know, add it to your list of things to do, right?

    I am thinking of you and your sweet family. xoxo

  100. Anonymous says:

    May God bless you and your family and keep you close to Him- my heart and head and everything goes out to you- thank you for sharing your story.

  101. Lynn says:

    Know that I’m here praying right now!
    Isaiah 26:4 Trust ye in the LORD for ever: for in the LORD JEHOVAH is everlasting strength.

    Prayer Bears
    My email address

  102. Anonymous says:

    Thinking of you and yours.
    Praying for you and yours.

  103. Anonymous says:

    My son died when he was 27 days old. That’s all I got. But it was enough to tilt my world off it’s axis.

    Someone said today that it’s scary when someone dies suddenly. She said this because a 60 something yr old advisor died at our University. My response was that people die even before their lives have started. Death isn’t correlated with age.

    Your story has stuck w/ me. I wish I could have known Tuesday. She sounds like a remarkable child.

  104. Rachel says:

    Praying for you sweet friend that I’ve never met. Oh how my heart hurts for you. I’m praying for the Peace that passes all understanding.

  105. Lindsay says:

    Today is Tuesday and I am praying for Tuesday and Avi both…. I hope they have met up and are quickly becoming friends. I’m thinking about you.
    Lindsay
    http://www.rememberingavi.blogspot.com

  106. Kelli says:

    Praying for God’s comfort!

  107. Emily says:

    1. You’re not supposed to know how to do this.
    2. Even when people say the wrong thing, they meant to say the right thing.

  108. Lynn says:

    It’s a privilege to be able to pray for your family!
    Isaiah 40:28-31 Hast thou not known? hast thou not heard, that the everlasting God, the LORD, the Creator of the ends of the earth, fainteth not, neither is weary? there is no searching of his understanding. He giveth power to the faint; and to them that have no might he increaseth strength. Even the youths shall faint and be weary, and the young men shall utterly fall: But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.
    Prayer Bears
    My email address

  109. Anonymous says:

    You inspire me to be a good mom.

    Tuesday inspires me to hug and kiss my kids a hundred times a day.

    God bless you and your family- I pray for you often! God’s arms are wrapped around you all.

  110. ME says:

    I found your blog about a week ago through a friend’s blog. It was all that I could think about the next day, and your family has been in my thoughts and prayers often since then. I have special prayers for little Piper…as the mom of 20-month-old twin girls I know that they have a bond with each other that goes far beyond the bonds most people will ever experience. I admire the strength and grace you have at such a difficult time. Prayers to you and your family…

  111. Julie Burran says:

    you continue to inspire me… many blessings and love to you all!!!!!

  112. Heidi says:

    I too am from Colorado and just recently had my first child. I am an avid Alice 105.9 listener and became a Miracle Maker last week. I did not get to hear Tuesday’s story as I had to get into work. By the time I got in and got logged in I had missed it. I searched for the story on the web pages all day. I just found your story today through a post on BBC. I am so sory for your loss and my prayers are with you and your family. She is with Jesus now and He will hold her tight until you join her.
    – Heidi heidid26@gmail.com

  113. Me..... says:

    Jessica,

    I have just came across your blog, and have just spend the last two hours sitting here, reading it, and crying my eyes out. I am so sorry that your family has had to go through this and I am so angry that your baby girl had been taken away in the cruelest of ways.

    I am due to qualify as a children’s nurse in Sept and reading your story has made me really question if I can do it. On the other hand, it has made me realise WHY I want to embark on this career – to really care for and help families like yours.

    My thoughts, prayers and hugs are with you and your family. You sound so, so strong but remember that you are allowed to be taken care of now. Your children sound amazing – they will get you through this in their own little ways.

    Kirsty x

  114. Vic says:

    I just want to let you know I continue to pray for your family.

  115. Brandy says:

    Tuesday did and still is changing lives. Thanks so much for sharing her life and death with us. Praying for your family.

  116. Teri says:

    I have gained so much just from knowing Little Tuesday through this world of internet technology. You are a remarkable family. My thoughts and prayers are with you all.

  117. Beth says:

    We continue to pray for you and your family!

    We have decided that every Tuesday we will do something a little more “fun” then our everyday activities to honor and celebrate Tuesday and all she has done for our family!!

    Yesterday, the kids and I pulled out the tent and we camped out in family room. Thank you Tuesday, you have changed my life and the lives of my children forever!!

    Sending our love to you!

  118. Kalei says:

    I know we don’t know each other well. I feel I know such an intimate part of your life. I have something I am sending to you and I hope you like it. It is a blanket I made (though I am not very good at it yet) with Tuesdays name on it. I made it for the kids to enjoy on a cool evening on the couch or to make a “tent fort” it isn’t meant to create more heart ache, just to remind them to have some fun. I will send it in the next week.

  119. Deanna says:

    I like the first person to comment….have no words.

    Thank you for sharing all of this and being so strong.

  120. Domestically Disabled Girl says:

    You are amazing. You are so true, and so right. God does not give cancer, and his heart breaks as ours breaks for your family. Thank you for sharing

  121. Samantha says:

    Just want you to know that I am continuing to pray for your family as well. Tuesday is in my thoughts all day long. Although I don’t know you personally I feel so lucky to have known of you and your sweet Tuesday. My life will never be the same.

  122. Lynn says:

    Know that I’m here praying!
    Isaiah 43:1-3a But now thus saith the LORD that created thee, O Jacob, and he that formed thee, O Israel, Fear not: for I have redeemed thee, I have called thee by thy name; thou art mine. When thou passest through the waters, I will be with thee; and through the rivers, they shall not overflow thee: when thou walkest through the fire, thou shalt not be burned; neither shall the flame kindle upon thee. For I am the LORD thy God, the Holy One of Israel, thy Saviour…
    Prayer Bears
    My email address

  123. Avery Tales says:

    Just wanted you to know that I was thinking of you this afternoon. I hope your having brighter days.

  124. Kristin Grayner says:

    Jessica,

    My husband and I are regulars at the Coffee Cabin. I happened to stop by the morning you and Wes were to be on the Alice morning show. I had planned on becoming a Miracle Maker but just hadn’t done it yet. I was in the car when your segment came on…at that moment I pulled over into the Wal-Mart parking lot and began to cry…I picked up the phone and became one of the 10 Miracle Makers they were wanting while you were there.

    I think of Tuesday and your family often. I pray for you all often.

    Kristin Grayner
    Parker, CO

  125. Joellyn says:

    I check on here just about every day. I am thinking about you, Charley, Axel, Spencer and Piper…a lot. (holding and squeezing your hand)

  126. Lynn says:

    Still praying for your family!
    Psalms 121:5-8 The LORD is thy keeper: the LORD is thy shade upon thy right hand. The sun shall not smite thee by day, nor the moon by night. The LORD shall preserve thee from all evil: he shall preserve thy soul. The LORD shall preserve thy going out and thy coming in from this time forth, and even for evermore.
    Prayer Bears
    My email address

  127. Gary and Shelice Murphy says:

    After our son died and I cried so much, for so long, my eyes seemed permanently swollen. I started looking in the mirror and telling myself it was new face lift technique. It was ridiculous, but somehow got me to leave my room/home even though I often thought I looked like I felt. As for brains…mine’s still healing. I never knew the brain could be so affected by emotional trauma… memory, thinking, concentration, ability to handle stress and more were all affected. it’s a reminder to me of the width and depth of grief and the need to be patient with ourselves and each other. You’re still in our hearts and prayers. Someone at a compassionate friends meeting warned us the second year can be worse than the first in someways. I didn’t want to hear that at the time, but later it really helped. People were so thoughtful for the awful firsts…birthday, Christmas, etc, but life moves on…and the gaping hole in our hearts is barely beginning to heal. When that 2nd year rolled around it helped to know it was ok to still have to take some days a moment at a time. Remember…breathing should be counted as a accomplishment!

  128. Lynn says:

    Still praying in Seattle!
    Psalms 31:1-3 In thee, O LORD, do I put my trust; let me never be ashamed: deliver me in thy righteousness. Bow down thine ear to me; deliver me speedily: be thou my strong rock, for an house of defence to save me. For thou art my rock and my fortress; therefore for thy name’s sake lead me, and guide me.
    Prayer Bears
    My email address

  129. Tia says:

    Still thinking of you.
    Still loving you and your honesty.

    Still praying for you and your family..

  130. The Morris Family says:

    I am still praying for you! Having one twin here and one there is so sweet and yet so hard. Our Josiah’s name means God heals, and I often find comfort in that the Lord allowed him to be here with us to help my heart in missing Joel. I am so thankful I have another child that shows me all that Joel would be doing, that I can embrace another one at that age, yet the sorrow almost seems greater than a mommy that has had a single child leave the earth, you and I always see two side by side, like the other day I was holding Josiah and looking at this hands and just trying to imagine Joel at this age, two years later, and seeing Josiah’s little blonde head bopping and so longing to see two. The one that is left here with us will never take the place but it sure is comforting to have the age space 1/2 filled in a sense. I hope that makes some sense, may the Lord pour torrents of grace into your heart today!!!
    Cindy

  131. jess says:

    Thinking of you,
    thinking of beautiful Tuesday.

  132. Jessica says:

    Jessica – there isn’t a day that has passed that you, Charley and your sweet children have not been in my prayers; that tears have not been shed for this terrible loss. Your precious Tuesday has changed my life, but so have you. I have been both awed and humbled by the tremendous grace and faith you have shown and continue to show.

    Thank you for sharing.

  133. "Summershine" says:

    Among all of the others who don’t know you, but have appreciated you sharing your story… My thoughts and prayers are with you and your family during this time. Thank you for sharing your story of your precious girl and your beautiful family!!!

  134. Lynn says:

    Sorry your body did that to you…does this happen very often?
    Can’t even imagine what you’re friend is feeling…her heart must be breaking so much! And am sure she’s so concerned about that precious little one…
    Continuing to lift up prayers!
    Psalms 31:4-5 Pull me out of the net that they have laid privily for me: for thou art my strength. Into thine hand I commit my spirit: thou hast redeemed me, O LORD God of truth.
    Prayer Bears
    My email address

  135. Lynn says:

    I’m so sorry!!!!!!!!! The beginning part was supposed to be on another site! Oh if I only had a brain! I’m so sorry I did this!

  136. TACOLADY75 says:

    My thoughts are with you as well as my prayers. Try to stay strong and remember the good days with Tuesday. Celebrate her life, don’t fixate on what you can’t control.

  137. Anonymous says:

    Still praying for you and your family.

  138. Teresa says:

    Wow. I can’t even wrap my mind or heart around your pain. I have twins. Wow. I’m so sorry. I’ll never forget her ever.

  139. Lynn says:

    Know that I’m here praying!
    Psalms 31:7-8 I will be glad and rejoice in thy mercy: for thou hast considered my trouble; thou hast known my soul in adversities; And hast not shut me up into the hand of the enemy: thou hast set my feet in a large room.
    Prayer Bears
    My email address

  140. lindsee says:

    As I read your blog I saw in you so much that I saw in my own mother when we lost our babysister to cancer. It will get easier but it will take time. I know that there is nothing anyone can say to make the pain go away, but I truley am sorry for your loss.. your family will be in our prayers.

  141. Lynn says:

    Continuing to pray as always!
    Psalms 31:9 Have mercy upon me, O LORD, for I am in trouble: mine eye is consumed with grief, yea, my soul and my belly.

    Psalms 31:14-15 But I trusted in thee, O LORD: I said, Thou art my God. My times are in thy hand: deliver me from the hand of mine enemies, and from them that persecute me.
    Prayer Bears
    My email address

  142. Anonymous says:

    Kandace (Miss USA 2001) told us about Tuesday and how she prayed for your family. We are praying for you here in Napa, CA. We are grandparents with 10 grand children. Our hearts are breaking for you as you have to live each day without Tuesday. Forever after that will be a special day in my heart to remember you and your courage. Sending love, Carol Marie

  143. The Morris Family says:

    I did not know if you got my e-mail or it might have went into you “junk” since I have not e-mailed you before, I want to be here for you, I want to be an ear, a shoulder of whatever YOU need.
    Cindy

  144. The Ryan Family says:

    Thinking about you.

  145. Beth says:

    We continue to pray for you!
    God bless!

  146. Kara says:

    I’ve been praying for you – for comfort, love, peace and one day easy joy.

  147. Anonymous says:

    I somehow came across this blog last night. My heart aches for your family and I can’t even pretend to imagine what you are going through. The video of the girls dancing is precious. What a beautiful angel you have. Thank you for sharing Tuesday’s story with the world. I will be praying for you and your family.
    Laura

  148. Lynn says:

    Stopping by to let you know that your family is always in my thoughts and prayers!
    Psalms 31:24 Be of good courage, and he shall strengthen your heart, all ye that hope in the LORD.
    Prayer Bears
    My email address

  149. Momof2bz says:

    Hi,

    I just wanted you to know that I think of your family every day and stop by often to see if you’ve blogged. I hope your heart is healing and that the time spent with your family is providing you comfort. We haven’t forgotten your family or Tuesday and still pray for you daily.

    Tara

  150. Michelle Savin says:

    Someday you’ll read this I am not sure when. “Blinded by the light” comes on the radio all of the time now. I had to share with you. The first time it happened I cried uncontrollably while driving my son to speech class. If I ever doubted angels before, I believe it them now. I hope that on that day I cried for you. I hope you find the light in every day.
    Best, Michelle

  151. Kelly says:

    I stumbled across your blog from someone on Etsy trying to set up an auction fundraiser for Tuesday’s fund, and your story touched me deeply. I have twin girls as well. I’m so very sorry for your loss.

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