Christmas tree is up. Lights are hung. It’s snowing. I’ve already eaten too many cookies. Tis the season. But in Cancer Land, tis the season for scans. Scans for us and for many of our friends. Scans suck. Everything about scans sucks. I’ve learned a new word, scanxiety, and that about sums it up. Not knowing what you’ll find is enough to bring a grown man to his knees, and that is where you’ll find us. On our knees, praying for No Evidence of Disease. We are hoping that this final round of chemo wiped out the shaving of tumor that had to be left behind and that Tuesday’s bone marrow is clean. She had a little spot on her femur last time that we don’t want to see. That being said, either way, we will proceed with transplant on the 29th of this month.
Just another manic Monday
I’m feeling less freaked about transplant after spending a fun night out with the parents of Justin and Hope. (Thanks guys!!!) They gave us the skinny, and gave us a glimpse in to life down the road a bit. We are all at very different stages of the fight, but once a cancer parent, always a cancer parent, and these people give cancer parents a good name.
Over the next two weeks, Tuesday will be having 22 procedures. I’m thinking of starting up smoking just to pass the time. Instead I’ll probably try and post some of the 78924839 things that I need to get on this blog. Tonight, I’m too dang lazy.
Pray for Hope and Justin as they have scans over the nest two weeks too. C L E A N
Good night.
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Merry Christmas to you and you family! Your little Tuesday is in my prayers daily 🙂 God will take care of this!
Praying that you’ll have peace through the scanxiety, and that scans will be C L E A N.
Always keeping you close in my heart and praying daily.
Cookies are baked and will be coming your way this week… so, stay away from the cigarettes and just eat chocolate!
Much love to you always!
Thank you for the update. Praying for you and your family everyday.
Sending happy thoughts over to you.
Love the pic of Tuesday! I sure hope your next 2 weeks go well! Always thinking of you, Tuesday and your precious family! I hope that the scans are clean!
Merry Christmas to you and yours!
JK, That picture is amazing. The girls are adorable. Tuesday will continue to be in our prayers as will your family.
I’ve heard of the twelve days of Christmas – but the 22 procedures of Christmas? Poor little thing and poor momma. I can’t even imagine how many hours of worry that consumes for you, added on to the 24 hours a day you already have worry. I’ll keep praying that you both get through this, with your health..and your sanity. And still waiting to know of there is ANYthing we bloggers can do during this time???
Fist time commenter but been reading/praying for your little Tuesday. What a bundle of joy!! Even though I have not walked your shoes with a child with cancer, reading about “scaniety” makes sense. Fear/anxiety must be just unshakable at times. Just through reading, your an awesome mom. I will continue to pray and have a blessed Christmas with little Tuesday home.
As always you guys are in my prayers. Love the pic of the girls. Tutu has sooooo much energy!
Saying prayers that all scans come back clean. Also sending prayers for the transplant! Love you guys!
PRAYING HERE! THe picture was adorable. I am so glad she is feeling good!
Praying for clean scans too!
Heavenly Father, please be with Tuesday and the entire Whitt family each moment of everyday. Make Your presence very, very real. Lift them up, may they feel peace and calm even in the midst of every procedure. Bless them this holiday season. Please be with the boys, while they cannot fully comprehend everything give them the understanding they need at this time and remove fears that try and harm their spirits. Let them feel love above all. Be with Piper as each time she is away from her twin sis it’s oh so hard. Comfort her, make time go by quickly. Be with mommy and daddy Whitt. Be their rock through everything, each and every detail. Give them emotional, spiritual and physical strength to endure and thrive. Bring financial blessing to them in order for them to be able to get everything prepared with the house for Tuesday’s transplant. Thank You for my friends Lord and continue to bring miracle after miracle. We thank You for the many, many miracles we have already seen and continue to believe You for it all. Be with Tuesday as she begins this road to full recovery, be with her during each procedure, strengthen her little body, give her peace Lord. May these scans come back clean Lord and may this stem cell transplant go without flaw and be a roaring success. Protect her little body from illness as well as the rest of her family. Keep a hedge of protection around each of them at all times. Thank You for these things. In Jesus name, AMEN!
PS Love you guys!!
Look at her, she is just a JOY.
How cute, and P too.
We will be thinking clean scan all the time.
Love,
Nicole G
Praying for clean scans.
What a beautiful photo. I love seeing her smile and play.
We will keep on praying.
lovely clean scan and a non smoking mama. come on, you made it this far without the coffin nails. 🙂
Praying for clean scans! As always, Tuesday and her posse are always in our thoughts and prayers.
Cigarette smoking? Just go straight to the patch. Less things for you to do 🙂
No Evidence of Disease. If I say it enough it will come true!
Praying for CLEAN scans and a happy healthy holiday for the entire family!!
Prayers, prayers, and more prayers. All of this with Tuesday gives Christmas a new meaning to me this year. We love you guys.
We will keep Tuesday in our prayers and thoughts this season, and off course the rest of the family too. Love and light to you girl. Wish I could do more.
We will be continuing to pray for Miss Tuesday! This week, we will include extra prayers for clean scans! You are all in our thoughts and prayers as I can't even imagine the scanxiety you go through – – God Bless you all!! I hope we get to see you on Friday!!
Jenn, Bill, Lauren & Avery
clean clean clean for little Tuesday. Thanks for the update JK and I wish I coud give her a hug myself and for dear Piper trying to understand it all. I pray for your beautiful family and hope January brings your every wish come true. Melinda.
Watching the kids put up the tree sure put joy in my heart. You and Charley are the best and your kids tell the story of how great you are as their parents. You make us so proud. I just know that Tuesday will be fine and her scans will be clean. Please let me know if there is anything we can do for any of you and of course you will be in our prayers. BTW, the lady at Sassafras gave me more items to auction off in Tuesday’s behalf. Hope to see you all again soon.
Love,
Aunt SuSu and Uncle Jim
praying for you guys, jess. go, tuesday!
As a mom to an amazing 3 year old little boy who has a newly diagnosed ‘undiagnosable brain and spine tumor’ I am praying hard for you that you receive news that your little girl is NED… You have a beautiful family. I will add you all to my nightly prayer list.
~~Chrissie
http://chrissiesthinkingspot.blogspot.com
Scanxiety! Yeah once a cancer parent, always a cancer parent, so I would just say hang in there and well in the mean time between scans love those kids like it is going out of style! That is and has been and will be my only goal in life (since the day we were diagnosed) ANd it is perfectly fine with me ;0) For the rest of my life all I want for Christmas for my birthday, for annyversaries of all kids is a hug from my healthy kids! And I know you feel the same way! Nothing wrong with that ;0) Take care (yeah yourself too) hug your little ones like it is going out of style, and enjoy these amazing moments these gifts you are here to enjoy with your little hero! You are such amazing parents (regadless of what you think ;0) and you are the very best thing that Tuesday can have! Keep the Holloways and the Millers around, they are truly the best friends you can have! They have been our support, our rock through thick and thin and we truly appreciate them too! They are wonderful! And so are you! Tons of love coming your way
Hickeys
http://www.caringbridge.org/visit/brando
Hey, my second comment for this post! I was a long time follower of Kahlilla from Australia’s blog–she too, fought neuroblastoma. Now your story has captivated me and this year my husband and I are going to give to others instead of each other for Christmas, so I am going to put a post up on my blog and for anyone who leaves a comment, I will donate a dollar to you and your family for each comment. I don’t have lots of folks who stop by my blog usually, but I thought this would be kind of fun, and hopefully you are okay with it too–I was going to use a picture of Tuesday up on the post–I really love the recent one of her and Piper. Please let me know ASAP if this is not okay–I am tied up all day tomorrow and was going to publish the post tonight. Really hope this is okay.
Still praying that you’ll have peace and that scans will be C L E A N.
Sending love!
🙂
It can be so hard sometimes. I pray that you have family and friends all around you. Hope in your heart always and Faith to overcome mountains. I will keep your family in my prayers. What a precious beautiful family you have.
Hi,
visiting from just like camping. (she’s a cool lady, eh?)
I have this little book by the computer where I right down specific prayer requests from bloggy friends.
It will say TUESDAY in big letter now and things about scanxiety and peace for each of you.
My boy had a brain shunt put in last week for hydrocephalus. It wasn’t fun, but it did give me a good hard look at hospital life and the strange beauty of the families bound together there. I’m so sorry you’re in that club. I’m there with you on a smaller scale, as we’ll go back for surgery about every five years. NOT that I’m comparing, just letting you know I have a tiny glimpse of your on-going battle (22 procedures…I can’t imagine) I’m rambling now. Sorry. I pray you’re battle is over in a miracle moment.
Heather
I thought I should let you know that I can’t follow your blog. Wait. That sounded rude. I mean, I actually literally can’t. There’s no “follow this blog” (nothing to click on) Maybe blogger just doesn’t like me right now, I’ll try later, but I thought I’d tell you it might be broken 🙂
Totally lifting you all up in prayers!
Precious Tuesday…
I will be adding you to my prayers!!
Blessings,
Hilary
My thoughts and prayers are with your family at this time. May you have peace through the trial and the best possible test results.
I hope that the scan brings you some good news…a little Christmas miracle!
Thinking of you today and praying for C L E A N!
Happy Holidays!!!!!!