WOW! ”Biggest End of Chemo Party” indeed. Thank you to our new friends, the Millers for including us in this awesome event. Justin Miller was diagnosed with Neuroblastoma two years ago this week. After 15 months of being cancer free, Justin presented with a brain tumor and is currently in treatment again. He is a gorgeous child, a true survivor and just oozes life. Please pray for this special kiddo and his family. We look forward to getting to know them all better. We also had a chance to meet the infamous, and might I add adorable, Hope Halloway and her family. Hope is another little miracle that had Neuroblastoma and is CANCER FREE. We hope to hang out with the Halloway clan as well. We know these families have lots to teach us. Lessons their children have taught them and continue to teach us all. Lessons of what life is really about. Thanks be to God for the lessons we have already learned. You have know idea what life is really about until you are faced with the possibility of your child’s death. Ok, now enough about that. We all had a ball and sweet Tuesday even stood on her own two legs and did a little dancing. Could she be any cuter?
How is Tuesday doing you ask?
FANTASTIC!
Life has been so fine since coming home. Tuesday is feeling great, or at least deserves a Daytime Emmy for acting like she feels great. Her past cycle of chemotherapy is notorious for being particularly pukey. Not only did Tuesday not puke, but she managed to eat thru the entire course. Quite a feat for someone who yanked her own NG tube just a couple weeks ago. Ok, so she’s eating like a toddler but, um, she IS a toddler so we are cutting her some slack. We have her on an organic diet (always did) with a smattering of McDonald’s (gasp!) french fries.
It’s been one big love fest around here since coming home. It feels so good to be back together. The girls have slipped right back in to twin-ness and Piper is proving to be quite the little mother hen. She makes sure Tuesday has every creature comfort she may need. Keeping her in Nuk’s and blankies and snacks. Tuesday on the other hand spends most of her day trying to get a hold of Piper’s new shoes. This is where the love ends. ”MINE! MINE! MIIIIIINEEEEE!!!!!!”, “NO! MINE SHOES!”
Spencer and Axel are fantastic big brothers and huge helps. And 5. ANd 7. And boys. Need I say more?
So where do we go from here?
Tuesday goes back in to Children’s on Sept 29th for her 4th (of 6) round of chemo. If all goes well, we will be in-patient for 4 days. Aunt SuSu will be flying in from Atlanta to help out at home. Still taking things one day at a time. We remain full of hope. We remain ever thankful to a Loving God. We remain, more than ever, so proud to be Tuesday’s mom and dad.
Beautiful, wonderful, amazing!!!! I am so happy for you guys and love the fact that you are once again all together like you should be 🙂 Of course we’ll keep praying and praying, Tuesday is truly a miracle and I do not doubt she has the most amazing things ahead of her! 4th round already, wow! She is such an amazing little trooper, and so are the rest of you!
I have tears streaming down my face to think of all you have been through and more to come… Tuesday is a huge inspiration and I pray that her strength and courage continue! She looks so adorable in the pictures and I am so amazed at your family! I am glad you got to have a big celebration and everyone knows that McDonald’s fries cures all! LOL still… in my book they are a cure all…
hugs and much love…
Beautiful family photos! Lovely to see all those huge smiles.
Thank you for sharing a little more of yourself with the blogging world.
K
JK,
Tuesday is blessed to have you and Charley as parents. I know I would never have been able to handle this as well as you have. I am amazed every dy at how you manage to use your struggle to enlighten others and help others. My prayers are with you always, and I know Tutu can beat this with flying colors. She looks absolutley amazing, and the hats are such cuties! Love the Tuesday shirts. Kenz and Nan love sporting theirs also.
Jess,
I am simply blown away by this post. I knew TuTu was home and I knew how well she was doing, but I guess it's "hearing" the happiness in your "voice" that has gotten me so moved. It is BEAUTIFUL to experience.
God is so amazing. He absolutely knew what He was doing when He chose Tuesday and your family. As awful as it is what she is going through, it is so obvious to see already the lessons Tuesday is teaching everyone. I look forward ,many years down the road, to seeing all that gorgeous girl is going to accomplish.
Much love & prayers always,
Debi
What a truly fantastic update and gorgeous pictures to boot. If I haven’t told you already, you guys are one heck of a beautiful family (and you’re not too bad to look at either!). It’s an honor to lend our support in this incredible journey. We cry when you do, and are ecstatic when we hear news like this. Keep the faith, dear friend. God loves you and so do we.
xo
lisa
I am so happy to be coming to help out with all the cuties pies. Spencer the ” Surfer Dude” Axel, the ” Lil Dude and Tuesday and Piper, ” The Dudetts. Tell them to go easy on me I am and OLD AUNT SUSU!
We love you all.
Love Aunt SuSu and UNcle Jim
Tuesday is a miracle… all the kids are miracles
So great to see Tuesday “shaking her groove thing”!! I am so happy for you all….what a blessing your little miracle is!
Love to you all,
Jenn, Paige and Olivia
Ok I’m crying like a baby. I am just so happy for your whole family! And Tuesday is just the most amazing little fighter I have ever seen!! Thank you soo soo much for taking the time to update us! I really do think about Tuesday, and your entire family, nonstop!
So glad to see this update! She looks GREAT! I am so glad to hear that everything is going so well at home. I so wish there was more I could do. But until I figure out what, I will continue to pray, pray, pray!
I have a total crush on all of you.
To see all the smiles on your faces brings a huge one to mine honey. Tuesday dancing, wow.
We love you honey and will continue to pray and do what we can to help in any way you need us to.
Is so great to hear from you all!! we have been praying non stop, and just know that TuTu is a miracle and is a child loved by GOD and so many of us!
I love the matching Tuesday shirts. Gotta get me one of those from cafepress. So extremely excited to see your sweet family so happy and miss Tuesday on her own two feet.
I’m so happy for Tuesday. God bless her and her family.
Tuesday looks wonderful & I think it's just amazing that she was dancing at the party! I know she still has a battle ahead of her & we're praying for her every day. She's such a miracle & can teach us all a lesson on life… so glad you're all back together at home!
Gorgeous! Gorgeous pictures. Gorgeous post. Gorgeous news! All of it! Gorgeous!
Love this picture! Everyone looks great! Tell TuTu to keep the no-puke streak alive! Non-pukers, UNITE!
COngrats! Love hearing the good updates and knowing life is giving you promise!
WOW…that is such a precious pic! You have such a beautiful family! You all are soo strong! I’m praying for ya’ll daily! Tuesday is truly a miracle and such a strong little girl!
Many blessings sent your way!
Brenda
Yes!!!!Yes!!!Yes!!!! OK I am just sitting here crying!!! —- Again. I am so happy for you all and will continue to pray for Tuesday and all the kids with cancer. Prayers are quite amazing and god is always listening. Wish I could help more, I bought you some yarn and could never send it because it seemed so meaningless, plus every time I picked it up I started crying, wet yarn is never good. Hang in there, we miss you
Elizabeth
What a true miracle……we are so glad you all had such a wonderful time at the party! Also, so thrilled that Tuesday is doing so well! We pray every day for the sweet, sweet girl! It was just so amazingly wonderful to run into you at the mall last week – it truly made my day/week!! You all continue to amaze us with your faith, courage, strength, etc. What a blessing Tuesday is to all of us and how blessed she is to have such amazing parents!
Big hugs!
Jenn, Bill, Lauren & Avery
I told my youth group about Tuesday and we prayed for Tuesday together. I told my pastor about the fundraisers and our youth group is helping to do something special for Tuesday.
Never lose hope!
Love, Stephanie
(Debi’s daughter)
I stand amaze at the Lord’s grace and love. May Tuesday be happy and continue improving and praying for a less stressful chemo round.
Hi Whitts! It’s Amanda from Colora…I mean North Carolina. :o)
Tuesday looks amazing, and I’m so happy to hear about her dancing! I think dancing, whether you look silly or not, is the most surefire way to bring smiles all around.
Congratulations on her improving health. I know she wouldn’t have been able to do it without such amazing parents. You guys truly rock. If you’re back in NC, let me know!
This is wonderful news that your darling little girl has been home, what a star she is! It’s great to be able to follow Tuesday’s progress from here in the UK. Your friends in Newbury have been so worried for you all but Grandpa Whitt has kept us informed.
Much love and huge hugs all round, thinking of you all xxxx
I’m so glad to hear that Tuesday is doing so well! She is so amazing and inspiring 🙂 I love that Piper is taking care of her twin, that is about the sweetest thing ever. And hooray for her big brothers being such good helpers.
Thinking of you all especially today as Tuesday begins round 4 of chemo. May she get through this cycle uneventfully!!
I WAS BLESSED TO HAVE BEEN AT THE MP AS IM FRIENDS WITH THE WEBERS.. I DO RECALL SEEING YOUR BEAUTIFUL FAMILY AND IM SO SORRY FOR YOUR LOSS…GOD BLESS.. JAMIE